Patient Public Involvement (PPI) - Ulster University PDF

Integrated Professional Learning and Patient Public Involvement (PPI) Kingston Rajiah School of Pharmacy and Pharmaceutical Sciences Learning outcomes At the end of this lecture, you should be able to: Understand and describe PPI in healthcare Understand and describe the rationale and benefit...

Integrated Professional Learning and Patient Public Involvement (PPI) Kingston Rajiah School of Pharmacy and Pharmaceutical Sciences Learning outcomes At the end of this lecture, you should be able to: Understand and describe PPI in healthcare Understand and describe the rationale and benefits to PPI in healthcare Understand the challenges to PPI in healthcare Understand how PPI is incorporated into pharmacy education Who is a patient? A person with a specific disease or condition who receives treatment from a healthcare provider Who is considered as public? The word derives from the Latin The people of a state, publicus, meaning nation, or municipality “pertaining to the people, state, or community”  What is Patient and Public Involvement (PPI)? PPI refers to an active partnership between members of the public and researchers Patient and public involvement entails research being carried out ‘with’ or ‘by’ members of the public, rather than ‘to’, ‘about’ or ‘for’ them This means that members of the public work alongside the research team and are actively involved in contributing to the research process as advisers and possibly as co-researchers Why do we need PPI? Public involvement representatives can therefore provide researchers with insights into what it is like to live with a particular illness what it is like to be a user of a treatment or health service These insights can help to make health research more relevant to the needs of patients, carers and service users Patient-Public Involvement What is it in healthcare? Work with people (patients/individuals) and communities (public) to ensure that the research priorities and innovations are developed in collaboration with people with lived experience of a particular service or health condition Work with patients, people who access services, carers, charities, community groups and others to bring diverse perspectives into the work The patient and public involvement strategy 2021-2026 ACC: https://www.england.nhs.uk/aac/ https://www.nice.org.uk/aac Ensure that a diverse range of patients and the public, especially people with lived experience, are involved in the direction and delivery of our work programmes. Proactively address equality and inclusion in our work Work collaboratively across the Accelerated Access Collaborative (AAC) partnership and more comprehensive system partners to embed a culture of patient involvement across AAC programmes. Support patients and public partners to have a meaningful and positive experience while working with us Understand our impact and outcomes Communicate our impact Patient-Public Involvement Examples of work research topics and questions of importance to patients and Identifying service users advice and feedback as a member of a project’s steering Offering group or a public involvement group to develop information leaflets for people taking part in Helping research that are easy to read and understandable the researchers with carrying out the research, for example Supporting by interviewing people taking part to share the results of research and get research evidence Helping into practice PPI The values Dignity and respect Personal and Inclusivity, Transparency and openness Public equity and Involvement diversity Collaboration, partnership and empowerment PPI The principles map out the strategy and motivations, identify a Engage representative cohort, and develop inclusive engagement practices value the patients’ and the public’s contribution to ongoing Acknowledge, value & support and transparent communication, any necessary training, and potential financial reimbursement tailored external communication and open feedback Communicate channels are crucial to maintaining engagement and accountability by all parties Trust In order to gain patients’ trust, organisations conducting PPI should be trustworthy and transparent about potential risks PPI Issues and solutions Issue Public services set out to fix problems for people and in doing so, they take away control from people making them passive recipients of services Solutions PPI places people at the heart of services, involving them from the outset in the commissioning, design and delivery and assessment of services PPI Challenges Lack of understanding: Both researchers and the public may not fully understand the concept of PPI Power imbalances: Power relationships between researchers and the people they research Resource limitations: Lack of resources Cultural norms: Cultural norms and variations in infrastructure Time commitment: PPI can be time consuming Fear of public disengagement: Some researchers may be concerned about the public disengaging from PPI Maintaining involvement: Training, preparation and retention Payment: PPI representatives may be paid inconsistently across trials PPI Medical to Social model From: Using models of pathology Conceptualising problems through professional knowledge perspectives only Supporting traditional service led culture Delivering what is standard To: Taking a holistic view Treating views / knowledge of service users as vitally and equally important Securing needs-led practice through PPI Tailoring to fit agreed need PPI Rationale Tailors services Enhances patient experience Encourages self-help Enhances safety and quality Facilitates ownership Increases efficiency Increases morale Reduces complaints Reduces serious adverse incidents Legislative requirement PPI Benefits- for patients High-quality, patient- Better informed Improved healthcare focused services and access to care care Stronger relationships Clearer understanding between patients and Clear information of rights and healthcare about care pathways responsibilities professionals Ability to influence Involvement in and an service delivery and ability to influence future service commissioning provision decisions PPI Benefits- for healthcare providers A greater understanding of what the patients want, so doctors can focus on what matters to them An opportunity to celebrate success in all aspects of patient experience and involvement Improved reputation because patients will have a positive experience Improved care and services will mean that doctor’s practice/clinic will be patients’ first choice for care and treatment Understanding current problems in care delivery and services Feedback will inform the continuous improvement and redesign of services Delivering NHS values Enabling public accountability Efficient use of resources Contributions to effective clinical governance Making services appropriate PPI Benefits- for NHS Effective public consultation and Greater openness and engagement can help to strengthen accountability in the NHS and public confidence in the NHS and involvement of the public help to may help to achieve a more create a better understanding of appropriate use of services and a complex NHS and health issues better understanding of the reasons for planned changes to services PPI Benefits- for society When people are involved in and can influence decisions that directly affect their lives, their self-esteem and self-confidence increase and this, in turn, improves health and well-being There is growing evidence that having strong social networks and cohesion benefits the health Involvement in discussions about health and health services can help to encourage this social cohesion within communities Legislation HSC (Reform) Act (NI) 2009 Sections 19 & 20 requires that service users and carers are involved in and consulted on: 1) The planning of the provision of care 2) The development and consideration of proposals for change in the way that care is provided 3) Decisions that affect the provision of care  Transforming Your Care TYC Transforming Your Care (TYC) is the name given to the programme of work aimed at changing Northern Ireland’s health and social care system so that it meets people’s needs now as well as in the future CORE ELEMENTS Patients making better choices Personalised Care Self-Directed Care Confidence in community-based services Care provided closest to point of need FOUNDATION PPI Transforming your Care. Available at http://www.transformingyourcare.hscni.net/ PPI Putting patients first and foremost NHS is there to serve patients and must therefore put the needs, the voice and the choices of patients ahead of all other considerations We must fully involve patients, staff, families and carers We must listen to patients We will shape care in equal partnership with the people who depend on it We will seek out and act on feedback, both positive and negative PPI When and where? Strategy development and policy formulation Investment decisions Operational issues Direct patient care The Commissioning / Engagement Cycle Engaging with patients and the public throughout the commissioning process PPI What can it achieve? Service users and carers can play a distinct role in their health and social care by: Understanding the causes of disease and the factors that influence health Self-diagnosing and treating minor self-limiting conditions Selecting the most appropriate treatment for acute conditions, in partnership with health professionals Managing treatments and taking medications appropriately Monitoring symptoms and the effects of treatment Being aware of safety issues and reporting them Learning to manage the symptoms of chronic disease Adopting healthy behaviour, to prevent the occurrence or recurrence of disease Integrated learning It is the process of making connections among concepts and experiences so that information and skills can be applied to novel and complex issues or challenges Pharmacy degree Why is PPI important in pharmacy education? The only route to become a practising pharmacist in the UK is to undertake an accredited MPharm degree All UK MPharm degrees are accredited by the General Pharmaceutical Council Within pharmacy education, the Council for Healthcare Regulatory Excellence (CHRE) and the General Pharmaceutical Council (GPhC), require standards to be met which include the incorporation of views and experiences of patients within our educational programmes. Ulster MPharm PPI Strategy Aim To increase the involvement of advocacy groups, patients and service users in pharmacy undergraduate education and research. Objectives To support students in the development of effective communication skills To enhance the empathetic qualities of pharmacy students when dealing with patients, their carers and other service users To help consolidate students’ clinical knowledge with practice Ulster MPharm PPI Workshops Year Workshop Level 4 Managing your medicines and communication skills Level 5 Parkinson’s UK workshop British Lung Foundation workshop Radiotherapy treatment of breast cancer patient seminar Level 6 Chemotherapy treatment of prostate cancer patient seminar Alzheimer’s UK Northern Ireland Chest, Heart and Stroke workshop Coeliac patient seminar Level 7 Diabetes management patient seminar Rheumatology patient seminar Results Qualitative comments Fourth year “I just found it really worthwhile to see first-hand how patients deal with illnesses, rather than reading it from a book.” “It was great to hear the patient’s life story and their views on healthcare professionals, etc. I feel it helps healthcare professionals recognise what really matters to the patient, and how they feel they could receive the best care possible”. Third year “Brilliant aspect of the course, really puts theory into practice and you get a real awakening that It’s not just a disease or symptom you are treating it’s a patient”. “I feel the workshops are important in order to understand the conditions on a personal level rather than a purely scientific-technical basis”. “Gives you an insight on how hard things are for an individual – makes you realise how you can help”. Second year “I feel these workshops are of great benefit and one of the best forms of practical teaching within the pharmacy course”. “Was excellent opportunity. Definitely the highlight of the semester”. “I think they allowed me to understand the ‘hands-on’ side of things; as opposed to just talking about communication with patients in lectures”. Any questions now? Later, contact me: [email protected]