Indigenous Research Ethics and Data Sovereignty
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Questions and Answers

What is the primary focus of Indigenous Research Ethics?

  • Engaging Indigenous communities in the research process (correct)
  • Limiting community participation in research
  • Ensuring government control over research data
  • Promoting individual researchers' interests
  • What do the OCAP® principles empower Indigenous communities to do?

  • Guide data collection and analysis (correct)
  • Control their own health programs exclusively
  • Limit access to data for non-Indigenous researchers
  • Obtain funding from government agencies
  • Which of the following is a barrier to equitable data governance for First Nations communities?

  • Availability of data to all communities
  • Recognition limitations under Canada’s Access to Information Act (correct)
  • Lack of interest in data sharing
  • Formal agreements with government agencies
  • What does First Nations data sovereignty emphasize?

    <p>Indigenous peoples' right to manage their own data (C)</p> Signup and view all the answers

    How does self-determination relate to Indigenous governance?

    <p>Empowers Indigenous peoples to determine their political status (C)</p> Signup and view all the answers

    Which of the following describes a key aspect of ethical relationships in data governance?

    <p>Formalized agreements for trust and privacy (A)</p> Signup and view all the answers

    What is one legal barrier related to data control for Indigenous peoples?

    <p>Broad categories under ATIP allowing data withholding (D)</p> Signup and view all the answers

    Which principle supports the protection and development of cultural heritage and rights for Indigenous peoples?

    <p>First Nations Data Sovereignty (B)</p> Signup and view all the answers

    What percentage of the Indigenous population in Canada were First Nations women in 2006?

    <p>59.9% (D)</p> Signup and view all the answers

    Which province had the largest number of Indigenous females in Canada in 2006?

    <p>Ontario (C)</p> Signup and view all the answers

    What was the median age of Indigenous females in Canada in 2006?

    <p>27.7 years (D)</p> Signup and view all the answers

    How many Indigenous females identified as having multiple Indigenous identities in 2006?

    <p>4,055 (A)</p> Signup and view all the answers

    Which region had the highest percentage of Indigenous females in relation to the total female population?

    <p>Nunavut (A)</p> Signup and view all the answers

    Among Inuit females, what percentage was under the age of 15 in 2006?

    <p>34% (C)</p> Signup and view all the answers

    What percentage of Indigenous females lived in Alberta in 2006?

    <p>16% (C)</p> Signup and view all the answers

    In 2006, what was the median age for Métis females?

    <p>29.9 years (D)</p> Signup and view all the answers

    What was a significant consequence of the fear of child apprehension for expecting mothers?

    <p>Avoidance of necessary healthcare during pregnancy (A)</p> Signup and view all the answers

    Which province ended the practice of birth alerts in June 2021?

    <p>Newfoundland and Labrador (A)</p> Signup and view all the answers

    What ongoing practice related to birth alerts remains in Quebec?

    <p>Birth alerts are still in practice with no end date (A)</p> Signup and view all the answers

    What was the focus of Ontario's decision regarding the elimination of birth alerts?

    <p>To enhance early intervention and prevention (C)</p> Signup and view all the answers

    What defines systemic violence as presented in the content?

    <p>Violence embedded in institutions and societal beliefs (C)</p> Signup and view all the answers

    What historical practice aimed to assimilate Indigenous children by devaluing their culture?

    <p>Residential school system (B)</p> Signup and view all the answers

    Which of the following provinces announced the elimination of birth alerts in October 2020?

    <p>Ontario (C)</p> Signup and view all the answers

    What impact do child welfare interventions have on Indigenous mothers?

    <p>Disproportionate impact (A)</p> Signup and view all the answers

    What is a key characteristic of Indigenous Peoples?

    <p>They self-identify as indigenous or tribal. (D)</p> Signup and view all the answers

    What is the primary aim of cultural genocide?

    <p>To systematically destroy the political and social institutions of a targeted culture. (C)</p> Signup and view all the answers

    Which type of colonization is characterized by large-scale immigration that replaces the original population?

    <p>Settler colonization (A)</p> Signup and view all the answers

    Which event required Indigenous children in Canada to attend residential schools?

    <p>The Indian Act of 1876 (C)</p> Signup and view all the answers

    What was a result of the Indian Act amendments made in 1911?

    <p>It permitted the expropriation of reserves for public works. (A)</p> Signup and view all the answers

    What defines surrogate colonization?

    <p>A foreign power supports settlement projects by non-native groups. (C)</p> Signup and view all the answers

    What does the term 'internal colonization' refer to?

    <p>Structural inequalities within a region of a state. (D)</p> Signup and view all the answers

    Which policy specifically affected Indigenous women in 1951?

    <p>Enfranchisement of Indigenous women who married non-Indigenous men. (D)</p> Signup and view all the answers

    Which example illustrates exploitation colonization?

    <p>The mining operations in India. (A)</p> Signup and view all the answers

    What was a key feature of the Sixties Scoop?

    <p>National apprehension of children to non-Indigenous homes. (C)</p> Signup and view all the answers

    What factor has contributed to difficult healthcare experiences for women in remote coastal BC communities?

    <p>Impact of historical trauma and colonization (B)</p> Signup and view all the answers

    Which of the following practices is believed to enhance spiritual connection during childbirth in Mi’kmaq and Inuit communities?

    <p>Remaining quiet during labor (D)</p> Signup and view all the answers

    What has improved participation in prenatal care programs for pregnant Indigenous women in Wetaskiwin, Alberta?

    <p>Provision of culturally safe care (B)</p> Signup and view all the answers

    Which of the following best describes the role of the traditional midwife in Indigenous communities?

    <p>A multi-faceted role encompassing various supportive duties (A)</p> Signup and view all the answers

    Why are knots avoided during pregnancy among Native American and Inuit communities?

    <p>They are believed to increase the risk of nuchal cords (B)</p> Signup and view all the answers

    Which statement reflects the impact of community-based care compared to mainstream healthcare services?

    <p>Community-based care emphasizes self-determination and support (A)</p> Signup and view all the answers

    In the Ojibwe language, what does the word for midwife mean?

    <p>The one who cuts the cord (D)</p> Signup and view all the answers

    What is a contributing factor for women feeling isolated during travel for intrapartum maternity care?

    <p>The absence of local maternity care options (B)</p> Signup and view all the answers

    What is emphasized as a significant aspect of ceremonies during a woman's menstrual cycle?

    <p>Cultural acknowledgment during this period (D)</p> Signup and view all the answers

    How do participants believe children should be involved in cultural ceremonies?

    <p>They should be included to carry on traditions (C)</p> Signup and view all the answers

    Which cultural practice is highlighted as a healing tool in the Circle Project?

    <p>Ceremonial practices like smudging and sweat lodges (C)</p> Signup and view all the answers

    What is the main benefit of integrating traditional knowledge into healthcare, according to the Circle Project?

    <p>Addressing the whole person: physical, mental, emotional, and spiritual health (B)</p> Signup and view all the answers

    What role do ceremonial practices play in promoting sobriety?

    <p>They provide community support and a sense of purpose (A)</p> Signup and view all the answers

    How does the involvement of families and children in cultural practices contribute to the community?

    <p>It ensures intergenerational knowledge is preserved (C)</p> Signup and view all the answers

    What is considered crucial for the emotional and spiritual healing process in the Circle of Care model?

    <p>Engagement in cultural ceremonies (B)</p> Signup and view all the answers

    What does the Circle Project suggest about the role of Indigenous culture in health?

    <p>It plays a key role in health maintenance and recovery (A)</p> Signup and view all the answers

    Flashcards

    Indigenous Research Ethics

    Engaging Indigenous communities in research, promoting capacity building and mutual respect.

    Ethical Data Sharing Agreements

    Formalized agreements to ensure trust and privacy when sharing data.

    OCAP® Principles

    Collaborative projects adhere to these principles to empower communities in data collection and analysis.

    First Nations Data Sovereignty

    Indigenous peoples have the right to control their data according to Indigenous laws, practices, and customs.

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    Self-determination

    Foundational right of Indigenous peoples to govern education, health, law, and cultural heritage.

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    Recognition Limitations (data)

    First Nations not recognized as governments under Canada's Access to Information Act, hindering data exchange.

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    Legislative Constraints (data)

    Canada's Access to Information Act allows withholding data under broad categories, such as ongoing investigations or economic interests.

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    Data Control (Indigenous)

    Indigenous Affairs and Northern Development Canada controls over 200 categories of data related to Indigenous peoples, limiting community access.

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    Birth Alerts

    A practice where hospitals notify child welfare agencies of a newborn, potentially leading to apprehension.

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    Systemic Violence

    Violence embedded in societal structures, not just individual acts, through unjust power exertion.

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    Child Welfare Interventions

    Actions taken by child welfare agencies to protect children, but often disproportionately impacting Indigenous mothers.

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    Indigenous Mothers

    Indigenous women who disproportionately face child welfare interventions.

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    Residential School System

    A historical Canadian government policy aiming to assimilate Indigenous children by suppressing their culture.

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    Policy Change (Birth Alerts)

    Progressive end of birth alerts across several provinces recognizing harm to Indigenous populations.

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    Ontario's 2020 Decision

    Eliminated birth alerts in Ontario due to their harmful impact on Indigenous women

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    Prevention and Early Intervention

    Strategies to address issues before they escalate, instead of penalizing.

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    Indigenous women in 2006

    Statistics Canada data from 2006 showcasing demographics of Indigenous women across Canada including population, regional distribution, and age.

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    Largest Indigenous female population province

    Ontario had the largest Indigenous female population in 2006 (124,900), making up 21% of Canada's Indigenous female population.

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    Median age Indigenous women

    The median age for Indigenous women in 2006 was 27.7 years, significantly lower than the 40.5 years for non-Indigenous women.

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    Indigenous women under 25 2006

    In 2006, a significant portion (46%) of Indigenous females were children and youth, including those under 15 (28%) and 15-24 age groups (18%)

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    Inuit women median age

    Inuit women in 2006 had a median age of 22.3 years.

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    Manitoba Indigenous female percentage

    Indigenous females comprised 16% of all females in Manitoba.

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    Nunavut Inuit population

    In 2006, 86% of the female population in Nunavut were Inuit.

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    Métis women in Alberta

    In 2006, Alberta had the largest Métis population at 22%

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    Indigenous People

    People who live in or have ties to a specific geographic area, often with their own institutions and cultures, who seek to remain distinct from the settler society.

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    Colonization

    Controlling or governing a territory or people, often involving a dominant nation and creating systems that enable it.

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    Settler Colonization

    Large-scale immigration by a group to replace or displace the original population, motivated by economic, religious or political reasons.

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    Exploitation Colonization

    Colonization focused on exploiting resources or using Indigenous peoples as labor.

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    Surrogate Colonization

    Foreign power supporting the settlement of a non-native group on land occupied by indigenous peoples

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    Internal Colonization

    Structural, political, and economic inequalities within a state between regions (or groups).

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    Cultural Genocide

    Systematic destruction of a group's cultural institutions and practices aimed at permanently destroying their culture.

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    Indian Act (1876)

    Canadian law that significantly impacted Indigenous peoples over the past 150 years with discriminatory policies and practices

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    Residential Schools (1870s-1996)

    Forced boarding schools for Indigenous children with the goals, often violent, to assimilate them into European society

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    Sixties Scoop

    The national apprehension of Indigenous children and relocation to non-Indigenous homes in various countries.

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    Historical Trauma Impact on Maternity Care

    Past injustices and discrimination affect Indigenous women's pregnancy and birthing experiences, creating barriers and impacting healthcare.

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    Culturally Safe Care

    Healthcare that respects and incorporates the cultural values and beliefs of the patient.

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    Community-Based Care

    Healthcare provided within the community, often proving more efficient and supportive than mainstream services.

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    Traditional Midwife Roles

    A midwife role encompassing multifaceted duties like teacher, healer, caregiver, nurturer, dietician, deliverer, and a spiritual advisor in some communities.

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    Spiritual Connection During Childbirth

    Indigenous cultures often emphasize spiritual connection during childbirth, such as specific practices to avoid discouraging the baby.

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    Cultural Ceremonies for Healing

    Cultural ceremonies, like smudging and sweat lodges, are powerful tools for emotional, spiritual, and communal healing.

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    Nuchal Cord Avoidance

    In some Indigenous cultures, knots are avoided during pregnancy and childbirth to reduce risk of a nuchal cord (cord around the baby's neck).

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    Transportation Barriers in Healthcare

    Challenges of accessing healthcare due to geographical locations and limited transport options.

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    Community-Centered Healing

    Healing practices involve the whole community, especially families and children, to ensure intergenerational learning and support.

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    Intrapartum Maternity Care Travel Isolation

    Mothers facing emotional isolation while travelling for intrapartum maternity care, and separation from loved ones are a significant factor.

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    Ceremonies for Sobriety

    Ceremonies can provide support and a sense of purpose for individuals facing challenges like addiction or trauma, promoting sobriety.

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    Holistic Healthcare

    Indigenous healthcare (Circle of Care) addresses the complete well-being of a person – physical, mental, emotional, and spiritual, recognizing cultural practices' importance.

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    Cultural Reconnection

    Engaging in traditional practices helps Indigenous women feel empowered, connected to their community, and maintain their cultural identity.

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    Inclusive Ceremonies

    Ceremonies and cultural services need to include children to carry on traditions and build a strong community.

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    Accessible Ceremonies

    Indigenous cultural practices like smudging need to be accessible in everyday life for healing and support, especially for people in recovery.

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    Moon time (menstrual cycle)

    A powerful time for Indigenous ceremonies, emphasizing cultural awareness and acknowledgment.

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    Study Notes

    Decolonization and Indigenization

    • Indigenous peoples typically inhabit distinct territories and maintain separate institutions
    • They often strive to preserve their cultural, geographical, and institutional distinctiveness rather than assimilating into settler societies
    • Defining who is indigenous is often best ascertained by members of those communities

    Colonization

    • Colonization involves controlling a dependent country, territory, or people, often through settler policies
    • Colonization manipulates historical, political, social, and economic contexts shaping Indigenous/state relationships.

    Types of Colonization

    • Settler (Canada): Large-scale immigration motivated by religious, political, or economic reasons. The original population is often forcibly replaced.
    • Exploitation (India): Fewer settlers focus on exploiting natural resources and the population as labor.
    • Surrogate (United States): Foreign powers support a settlement project by a non-native group on indigenous land
    • Internal (India): Structural, political, and economic inequalities within a state affect indigenous peoples.

    Cultural Genocide

    • Systemic destruction of an indigenous group's political and social institutions and practices
    • The goal is to irreversibly destroy their culture.
    • Families are disrupted to prevent the transmission of traditional knowledge and cultural identity

    Major Events Defining Colonization in Canada (1876: Indian Act)

    • 1869: Gradual Enfranchisement commenced.
    • 1884: Forced attendance of Indigenous youth in schools
    • 1895: Prohibited Indigenous ceremonies/dances
    • 1911: Allowed municipalities and companies to expropriate reserve lands.
    • 1914: Required permission to wear traditional clothing in public
    • 1918: Mandatory for Indigenous parents to send their children to residential schools
    • 1920: Compulsory residential schools
    • 1927: Prevention of First Nations from continuing land claims.
    • 1951: Indigenous women could maintain or regain their status if they married non-indigenous men.
    • 1985: Bill C-31 granted Indigenous women the right to keep or regain their status and allow grandchildren born to a status and non-status couple to be registered for Indian status.
    • 1996: Residential Schools were still active.
    • 1950's-1990's: Sixties Scoop (child apprehension from Indigenous families)
    • 1996: Residential Schools officially closed.

    Steps for Decolonization

    • Establish a better understanding of cultural diversity and its various worldviews
    • Address points of view of non-Indigenous people that are exploitative
    • Develop a historical perspective to examine how colonialism continues to survive
    • Examine how colonial norms have shaped perspectives and identities.
    • Identify and address desires and internalized identities that perpetuate oppression.

    Indigenous Governance

    • Existing governance forms often existed prior to colonization
    • Indigenous peoples adapted their governance practices and integrated into colonial structures, such as band councils and treaties

    Data Governance for Indigenous Communities

    • The OCAP® Principles (Ownership, Control, Access, Possession)
      • Highlight the need to manage data in ways that reflect inherent rights and cultural practices/customs.

    Decolonization and Indigenization Efforts

    • Identifies colonial systems and relationships to challenge them
    • Often accompanies indigenization as a response to inherent colonialism.
    • Includes paradigms shifts from denial to embrace Indigenous philosophies and knowledge systems.

    Colonization's Impact on Indigenous Women and Girls

    • Indigenous women have been affected by specific historical traumas due to colonization.
      • Residential schools
      • The Sixties Scoop
      • Intergenerational trauma
    • Indigenous women are especially vulnerable to systemic violence and discrimination in matters of healthcare, law, finances, and politics.

    Health Status of Indigenous Women

    • Data shows Indigenous women experience poorer health outcomes compared to non-Indigenous women
    • Poorer educational attainment and lower income levels create disadvantages in healthcare accessibility and health outcomes

    Conclusion

    • Addressing these historical injustices and systemic issues affecting Indigenous women is key to a more just society.

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    Description

    Test your understanding of Indigenous research ethics, the OCAP® principles, and data sovereignty issues faced by First Nations communities. Explore the barriers to equitable data governance and the importance of self-determination in Indigenous governance. This quiz covers critical aspects related to Indigenous data and cultural heritage.

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