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Summary

This document discusses the National Disability Insurance Scheme (NDIS) and its various aspects, including funding models, eligibility criteria, and the different types of support provided to people with disabilities in Australia.

Full Transcript

The Sector of Disability The National Disability Insurance Scheme (NDIS) 1 DR NANCY Research Fellow / Senior Research Associate SADKA DEd, MEd, BA (Honours)...

The Sector of Disability The National Disability Insurance Scheme (NDIS) 1 DR NANCY Research Fellow / Senior Research Associate SADKA DEd, MEd, BA (Honours) Olga Tennison Autism Research Centre (OTARC) Research Fellow Senior Research Associate The Sector of Disability Interest in early identification of - Mapping and storing current data The National Disability autism and co-occurring conditions - Matching data sets to future in toddlers and preschoolers proposed research questions Insurance Scheme Current research: - Identifying early predictors of Attention-Deficit/Hyperactivity Youth to Adulthood Disorder (ADHD) in autistic toddler and preschoolers PSY3ASD - Understanding the relationship October 8, 2024 and interaction of autism, sleep challenges, and anxiety in this cohort 2 TALKING POINTS 1. What defines disability? 2. Why are people with disabilities and their families vulnerable? 3. Understanding funding and support - the National Disability Insurance Scheme 4. Case studies - application 3 Talking Points – What defines disability? Merriam-Webster dictionary defines the word disability as a: - physical, Self-care or - mental, management - cognitive, Mobility Learning - or developmental condition That Social interaction - impairs, Communicatio - interferes with, n - or limits a person's ability To - engage in certain tasks 4- or actions Talking Points – What defines disability? The Australian Bureau of Statistics (ABS) groups disability in a broader sense of categories and have identified 6 overarching groups: Sensory Intellectual Psychosocial Physical Head Injury Other Nervous or Breathing Sight emotional difficulties Stroke Restrictions Mental illness in everyday Difficulty with activities due Hearing learning and Chronic pain to other long- understanding term Memory conditions or Acquired ailments Incomplete Brain Injury Speech Social and use of limbs Behavioural 5 https://www.aihw.gov.au/getmedia/ee5ee3c2-152d-4b5f-9901-71d483b47f03/aihw-dis-72.pdf.aspx?inline=true p.135 Talking Points – What defines disability? Prevalence of disability in Australia (last updated 5 July 2022): 1. 1 in 6 (18%) people in Australia have disability (about 4.4 million people). 2. 1 in 3 (32%) people with disability have severe or profound disability (about 1.4 million). 3. 3 in 4 (77%) people with disability, their main form of disability is physical. 4. 1 in 4 (23%) people with disability, their main form of disability is mental or behavioural. https://www.aihw.gov.au/reports/disability/people-with-disability-in-australia/contents/people-with-disability/prevalence-of- 6 disability Talking Points – Disability Quarterly Reports Q4 – released June 2024 p85 7 https://www.ndis.gov.au/about-us/publications/quarterly-reports Talking Points – Disability Quarterly Reports Q4 – released June 2024 p85 8 https://www.ndis.gov.au/about-us/publications/quarterly-reports Talking Points – Disability Quarterly Reports Q4 – released June 2024 p86 9 https://www.ndis.gov.au/about-us/publications/quarterly-reports Talking Points – Vulnerability Merriam-Webster dictionary defines the word vulnerable as someone: 1: capable of being physically or emotionally wounded 2: open to attack or damage Residential or hospital Family Community Work School 10 Talking Points – Vulnerability The World Health Organization (WHO) reported in 2020: An estimated 1.3 billion, 16% of the world's population, or 1 in 6 of us experience significant disability. People with disability were 1. more than twice as likely to report finding healthcare provider skills inadequate to meet their needs 2. four times more likely to report being treated badly 3. Nearly three times more likely to report being denied care. https://www.who.int/news-room/fact-sheets/detail/disability-and-health 11 Talking Points – Vulnerability The Better Health Victoria “People with disabilities are among some of the most vulnerable people in our society due to their dependence on others for care and support or because of social isolation, their place of residence or the nature of their disability.” They also are more likely to experience neglect (depravation of health, care, emotional, social, economic) and violence (physical, verbal, mental, sexual). https://www.betterhealth.vic.gov.au/health/servicesandsupport/people-with-a-disability-who-experience-violence-abuse-or-neglect 12 Talking Points – Vulnerability Mandated Requirements 1. Working with Children Check 2. Police Check 3. Code of Conduct https://www.vdwc.vic.gov.au/rights-and-responsibilities/disability-worker-code-of-conduct Desirable 1. Certificates in disabilities: courses in community service, individual support 2. First Aid (usually offered by the employer) BONUS If you are currently studying to become a social worker, physiotherapist, nurse or another profession within the health/care industry 13 Talking Points – Vulnerability Families and carers of people with disabilities are also vulnerable. FAMILY Case Scenario Family: mum, dad, 3 children aged 12, 8, and 4 years old. The 8 years old has Intellectual Disability and seizures. The family has limited support from extended family members and community. 14 Talking Points – Vulnerability Families and carers of people with disabilities are also vulnerable. School Case Scenario John is 16 years old attending the same school as his brother, Michael aged 11. Michael has Down Syndrome and attends certain subjects at that school (inclusion program) on certain days and spends the remaining days attending a special school. 15 Understanding Funding and Support in Australia 16 Talking Points – Supports Prior to the NDIS The Federal government and states had several programs to address the different needs of people with disabilities. The individual had to fit a “box”, “a program”, and a particular model for funding. The programs were generally: - Underfunded - Unfair ISP - Fragmented - Little choice of supports - No guarantee of funding 17 Talking Points – Supports Prior to the NDIS ❑ Young adults with disabilities connected with services through their Future for Young Adults (FFYA) or Individualized Support Packages (ISP) funding ❑ The government gave the money directly to organizations ❑ The government subsidized lots of services (i.e. Local councils, respite houses, day programs) 18 Talking Points - The Premise of the NDIS Why is it important to know the history of the NDIS? 2010 2013 2016 2020 Productivity Commission The NDIS Act was Scheme began rolling Full scheme available conducted a public created, along with the out nation-wide inquiry Agency 500,000 Australians are >600,000 are accessing >1000 submissions from Trial sites were rolled expected to access the the NDIS people with disability out across four states NDIS 19 Talking Points – Objective of the NDIS Social and Economic The main objective of the NDIS is Participation to provide all Australians who acquire a Pursue Individuals’ Choice and permanent disability before the age of 65 Goals and Control Dreams Which substantially impacts how they manage everyday activities With the reasonable and necessary Raise High Quality and Innovative Community supports they need to live an ordinary life. Awareness Supports for Independence https://www.ndis.gov.au/search?keywords=Overview+of+the+NDIS+Operational+Guideline+-+About+the+NDIS&content_type=All 20 Talking Points – Title So why is it called the NDIS and what does the actual title mean? National Disability Insurance Scheme 21 Talking Points – Title National The NDIS is now available to all Australians, irrespective of where they live. As of June 30, 2024, the total number of participants is >600,000 The funding is for anyone meeting the following criteria:. Is an Australian citizen / a permanent visa holder. Has a life long disability. Is aged between 0 - 65 years. Has developmental concerns and is under the age of nine (Early Childhood Approach) NDIS Quarterly Report to disability ministers - June 2024 https://www.ndis.gov.au/about-us/publications/quarterly-reports 22 Talking Points – Early Childhood Approach Quarterly Reports Q4 – released June 2024 p81 https://www.ndis.gov.au/about-us/publications/quarterly-reports 23 Talking Points – Title Insurance The NDIS refers to insurance on their website as: giving all Australians peace of mind if they, their child or loved one is born with or acquires a permanent and significant disability, they will get the support they need. However, there is more to the meaning of the word “insurance” in the context of the NDIS as it: - underpins how the scheme operates - has a greater capacity for cost management - maintains sustainability by calculating the total future cost of support for all eligible participants Insurance - Value for money both now and in the future: encouraging early investment and intervention to reduce the total future cost of disability for Australia as outcomes for participants improve NDIA 2019-2023 Board of the NDIA https://www.ndis.gov.au/media/1644/download 24 Talking Points – Title Scheme The NDIS refers to the word scheme on their website as If you try to understand all the NOT a welfare system. It is designed to help people get NDIS in one session, you may the support they need so their skills and independence need a referral to talk with a improve over time. psychologist… The scheme itself is implemented by the NDIA (agency) and has a board of governance. 25 Budget Categories under The NDIS 26 Talking Points – Plans The NDIS will fund what is Core Support “reasonable” and “necessary” for the participant to achieve Capital Funding their goals. They also take into consideration informal support (family, friends, community) Capacity Building 27 Talking Points – Plans Outcome Framework Domain A- Core Support Category Support Purpose A1-Daily Living A1-Assisstance with Daily Life A2-Daily Living A2-Transport Funding A3-Daily Living A4- Social & Community A3-Consumables A4-Assistance with Social & B- Capital Participation B1-Daily Living Community Participation B1-Assistive Technology Funding B2-Home C1-Choice and Control B2-Home Modifications C1-Support Coordination C- Capacity C2-Home C3-Social & Community C2-Improved Living Arrangements C3-Increased Social and Community Building Participation Participation C4-Work C4-Finding and Keeping a Job C5-Relationships C5-Improved Relationships C6-Health & Wellbeing C6-Improved Health and Wellbeing C7-Lifelong Learning C7-Improved Learning C8-Choice and Control C8-Improved Life Choices C9-Daily Living C9-Improved Daily Living Skills 28 Talking Point – Funding ❑ The person with a disability will have a specific plan tailored to the person’s goals and needs. ❑ The NDIS will place the individualized funding in the person’s plan – choice and control. ❑ The government is no longer subsidizing services – Providers offer services and compete for service delivery 29 Talking Points – Plans The plan is about the person’s goals. What they want to learn and achieve. It is about their independency. Where they want to work and live. 30 Copied with permission 31 Copied with permission Talking Points – Psychologists, Key Contributors Early Therapy Behaviour Assessment Healthy Supported Finding Social Daily Training in Support Support Living Independent and Participation living Behavioural Planning Living Keeping support Managemen a Job t Strategies Infants and Toddlers ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ Children ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ Teenagers ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ Young Adults ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ Mature Adults ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ 32 Talking Point – Application Case Study - example Alex is 6 years old with a diagnosis of Autism and language delay. He lives at home with mum and older sibling. Lately, Alex figured out how to unlock the front door and has been absconding from the family home. His mum is besides herself as she is trying to figure out how to keep him safe. You have been contacted and assigned to this case. 33 Talking Point – Application Case Study - example Take a moment to think about: - How would you approach the family? - What strategies would you put in place? - What tools would you use? - What recommendations for support would you advise in your report? 34 QUESTIONS Dr Nancy Sadka [email protected] 35 Thank you latrobe.edu.au/otarc La Trobe University CRICOS Provider Code Number 00115M © Copyright La Trobe University 2018

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