Neurodiversity Lecture 4 PDF

Neurodiversity Lecture 4 Associate Professor Damian Scarf  Lecture Outline Social Model of Disability Neurodiversity Paradigm Common Goals Case Study: Autism Social Model of Disability Fundamental Principles of Disability 1975 Social Work with Disabled People 1983 Co...

Neurodiversity Lecture 4 Associate Professor Damian Scarf  Lecture Outline Social Model of Disability Neurodiversity Paradigm Common Goals Case Study: Autism Social Model of Disability Fundamental Principles of Disability 1975 Social Work with Disabled People 1983 Contrasted with the Medical Model Medical Model of Disability Social Model of Disability Coining ‘Neurodiversity’ Independent Living (email list) 1990s Judy Singer ‘Why can’t you be normal’ (1999) Contrasted with the Disorder Model Neurodiversity Paradigm “Neurodiversity is a natural and valuable form of humanity.” "The idea that there is one 'normal' or 'healthy' type of brain or mind, or one, 'right' style of neurocognitive functioning, is culturally constructed…” "The social dynamics that manifest in regard to neurodiversity are similar to the social dynamics that manifest in regard to other forms of human diversity”  Common Goals Neurodiversity Shared Medical Paradigm Space Model  Common Goals Some Neurocognitive Conditions We Should Treat Or Cure Minimizing Harm Pragmatic Compromise Not Unduly Pathologizing Difference  Autism “colours every experience, every sensation, perception, thought, emotion, and encounter, every aspect of existence" autistic self-advocate Jim Sinclair (1993)  Autism Language Preference Social Camouflaging Self Esteem  Language Preference Person-First Identity-First Language Language (PFL) (IFL) “Person with autism” “Autistic person”  Measuring Preference Rate each of the items on the following 5-point scale: 1 = strongly dislike to 5 = strongly like. 1. Has autism 1 2 3 4 5 2. Person with autism 1 2 3 4 5 3. On the autism spectrum 1 2 3 4 5 4. Autistic 1 2 3 4 5 5. Autistic person 1 2 3 4 5 6. Autism Spectrum Disorder 1 2 3 4 5 7. Autism Spectrum Condition 1 2 3 4 5 8. Low Functioning Autism 1 2 3 4 5 9. High Functioning Autism 1 2 3 4 5 10. Aspie 1 2 3 4 5  Preference Data Person-First Terms Identity-First Terms Little/No Experience Professional Family Member/Friend Parent Autistic Adult 0 0.5 1 1.5 2 2.5 3 Degree of Preference  Social Camouflaging Compensation (strategies used to actively compensate for difficulties in social situations) Masking (strategies used to hide autistic characteristics/portray a non-autistic persona) Assimilation (strategies that reflect trying fit in with others in social situations) Measuring Camouflaging Rate each of the items on the following 7-point scale: 1 = strongly disagree to 7 = strongly agree. Compensation e.g., “When I am interacting with someone, I deliberately copy their body language or facial expressions.” Masking e.g., “I monitor my body language or facial expressions so that I appear relaxed.” Assimilation e.g., ”I have to force myself to interact with people when I am in social situations.”  Camouflaging Data Non-Autistic Autistic Assimilation Masking Compensation 0 1 2 3 4 5 6 Level of Agreement  Self Esteem Attitude Towards Self-Esteem Autism (ATA) Questionnaire e.g., “On the whole, I am satisfied with myself.” “I feel that I have a number of e.g., “My autism has advantages” good qualities.” “I see autism as a gift” “I feel that I'm a person of “I prefer to stay autistic” worth.” “I feel happy about being “I take a positive attitude autistic.” toward myself.”  Self Esteem Self-Esteem ATA Disorder Neurodiversity Perspective Perspective  Lecture Outline Social Model of Disability Neurodiversity Paradigm Common Goals Case Study: Autism