Podcast
Questions and Answers
For cases diagnosed between January 1, 2018, and December 31, 2024, which update should be used for ICD-O-3.2 Histology Code and Behavior?
For cases diagnosed between January 1, 2018, and December 31, 2024, which update should be used for ICD-O-3.2 Histology Code and Behavior?
- Any of the updates (correct)
- "2023 Guidelines for ICD-O-3.2 Histology Code and Behavior Update"
- "2022 Guidelines for ICD-O-3.2 Histology Code and Behavior Update"
- "2021 Guidelines for ICD-O-3 Histology Code and Behavior Update"
According to the Solid Tumor Rules, what should a specialty pathologist's guidance provide to the review and revision process?
According to the Solid Tumor Rules, what should a specialty pathologist's guidance provide to the review and revision process?
- A cost-effective approach to terminology updates
- Specialty input (correct)
- Guidance on reimbursement policies
- Physician coding certification
What does the "CPC*Search Tool" primarily help determine?
What does the "CPC*Search Tool" primarily help determine?
- The correct DRG code
- Biologically valid site/histology combinations (correct)
- Accurate solid tumor staging
- Appropriate chemotherapy regimens
What approach should be taken when applying solid tumor rules that are presented in a hierarchical order within each module?
What approach should be taken when applying solid tumor rules that are presented in a hierarchical order within each module?
Which element is essential to include when submitting technical questions related to the Solid Tumor Rules?
Which element is essential to include when submitting technical questions related to the Solid Tumor Rules?
In the context of multiple primaries, what is the significance of tumors being described as simultaneous?
In the context of multiple primaries, what is the significance of tumors being described as simultaneous?
Regarding the use of terms like 'tumor' or 'mass' in the Solid Tumor Rules, what must be present to consider them significant for coding?
Regarding the use of terms like 'tumor' or 'mass' in the Solid Tumor Rules, what must be present to consider them significant for coding?
The annual updates to the Solid Tumor Rules include all of the following EXCEPT:
The annual updates to the Solid Tumor Rules include all of the following EXCEPT:
What is the role of the Solid Tumor Editorial Board?
What is the role of the Solid Tumor Editorial Board?
In the annual updates to the Solid Tumor Rules, what action is recommended for previous versions?
In the annual updates to the Solid Tumor Rules, what action is recommended for previous versions?
What is the appropriate action if a specific histology code cannot be confidently identified when applying the Solid Tumor Rules?
What is the appropriate action if a specific histology code cannot be confidently identified when applying the Solid Tumor Rules?
When are the 2007 Multiple Primary and Histology coding rules to be used rather than the Solid Tumor Rules?
When are the 2007 Multiple Primary and Histology coding rules to be used rather than the Solid Tumor Rules?
According to the general instructions, what action should staff take regarding ambiguous terminology when the histology cannot be coded?
According to the general instructions, what action should staff take regarding ambiguous terminology when the histology cannot be coded?
What takes precedence when there is conflicting information between the final diagnosis and the synoptic report?
What takes precedence when there is conflicting information between the final diagnosis and the synoptic report?
According to information provided, which case listed is not an individual site group that has its own specific Solid Tumor Rules section?
According to information provided, which case listed is not an individual site group that has its own specific Solid Tumor Rules section?
What action should be taken if one encounters ambiguous terminology from the SEER Manual and CoC Manual?
What action should be taken if one encounters ambiguous terminology from the SEER Manual and CoC Manual?
Which of these is the correct synoptic report?
Which of these is the correct synoptic report?
What is the significance of the WHO/IARC in the context of the Solid Tumor Rules?
What is the significance of the WHO/IARC in the context of the Solid Tumor Rules?
The quality of the Solid Tumor Rules directly relates to:
The quality of the Solid Tumor Rules directly relates to:
Which action is against Multiple Primary Rules?
Which action is against Multiple Primary Rules?
Which option fits the term 'Clinically-disease free'?
Which option fits the term 'Clinically-disease free'?
Which statement properly applies to synonyms describing multiple histologies within a single tumor, according to the general instructions?
Which statement properly applies to synonyms describing multiple histologies within a single tumor, according to the general instructions?
How should a registrar respond when a physician suggests that a more specific histology should be coded.
How should a registrar respond when a physician suggests that a more specific histology should be coded.
In instances characterized by distinct discrepancies, which data source assumes precedence in furnishing comprehensive details about histology?
In instances characterized by distinct discrepancies, which data source assumes precedence in furnishing comprehensive details about histology?
What action should be taken regarding tumor staging when assigning multiple primaries?
What action should be taken regarding tumor staging when assigning multiple primaries?
The edition is used to help to keep up with worldwide nomenclature and identification:
The edition is used to help to keep up with worldwide nomenclature and identification:
What is the recommended approach if one encounters conflicting information between the synoptic report, CAP protocol and final diagnosis?
What is the recommended approach if one encounters conflicting information between the synoptic report, CAP protocol and final diagnosis?
Regarding the use of biomarkers in coding, what principle should be followed when clinical trials are being conducted to determine whether biomarkers can identify multiple primaries?
Regarding the use of biomarkers in coding, what principle should be followed when clinical trials are being conducted to determine whether biomarkers can identify multiple primaries?
In what context are the terms 'tumor,' 'mass,' 'tumor mass,' 'lesion,' 'neoplasm,' and 'nodule' considered significant according to the general instructions?
In what context are the terms 'tumor,' 'mass,' 'tumor mass,' 'lesion,' 'neoplasm,' and 'nodule' considered significant according to the general instructions?
When do rules and other information from previous updates apply according to the Solid Tumor Rules general instructions?
When do rules and other information from previous updates apply according to the Solid Tumor Rules general instructions?
When using the Solid Tumor Rules to determine whether tumors are single or multiple primaries, what action should be taken with tumors described as metastases?
When using the Solid Tumor Rules to determine whether tumors are single or multiple primaries, what action should be taken with tumors described as metastases?
According to the general instructions, in which order should documents be consulted when determining whether multiple tumors are a single primary?
According to the general instructions, in which order should documents be consulted when determining whether multiple tumors are a single primary?
According to the general instructions on ambiguous terminology, what is the appropriate action if the histology cannot be coded?
According to the general instructions on ambiguous terminology, what is the appropriate action if the histology cannot be coded?
In the context of annual revisions to the Solid Tumor Rules, what action should be taken regarding previous versions?
In the context of annual revisions to the Solid Tumor Rules, what action should be taken regarding previous versions?
According to the general instructions, what key action must be taken when submitting technical questions related to the manual?
According to the general instructions, what key action must be taken when submitting technical questions related to the manual?
According to the general instructions, what should one do with terms such as 'tumor' or 'mass' in the Solid Tumor Rules when determining if a term is malignant?
According to the general instructions, what should one do with terms such as 'tumor' or 'mass' in the Solid Tumor Rules when determining if a term is malignant?
According to the general instructions, what is the recommended order of document consultation for evaluating whether multiple tumors are a single primary?
According to the general instructions, what is the recommended order of document consultation for evaluating whether multiple tumors are a single primary?
According to the general instructions, what measure should be taken if, upon review of terminology, the histology remains uncodable?
According to the general instructions, what measure should be taken if, upon review of terminology, the histology remains uncodable?
According to the general instructions, when should previous versions of the Solid Tumor Rules be applied to cases?
According to the general instructions, when should previous versions of the Solid Tumor Rules be applied to cases?
According to the general instructions, when consulting the solid tumor rules what should happen once the first applicable rule is found?
According to the general instructions, when consulting the solid tumor rules what should happen once the first applicable rule is found?
According to the general instructions and when using the Solid Tumor Rules to determine single or multiple primaries, what action is recommended for tumors described as 'metastases'?
According to the general instructions and when using the Solid Tumor Rules to determine single or multiple primaries, what action is recommended for tumors described as 'metastases'?
According to the general instructions, when can the terms 'tumor','mass,' etc. be disregarded?
According to the general instructions, when can the terms 'tumor','mass,' etc. be disregarded?
According to the general instructions for the Solid Tumor Rules, what is the primary role of physician guidance in the review and revision process?
According to the general instructions for the Solid Tumor Rules, what is the primary role of physician guidance in the review and revision process?
The Solid Tumor Rules excludes lymphoma and leukemia with histology codes M9590 – M9993. What action should be taken when presented with hematopoietic primaries or staging systems?
The Solid Tumor Rules excludes lymphoma and leukemia with histology codes M9590 – M9993. What action should be taken when presented with hematopoietic primaries or staging systems?
According to the annual updates, what is the first date new codes become valid and when are when new instructions become active?
According to the annual updates, what is the first date new codes become valid and when are when new instructions become active?
According to the general instructions, when are the 2007 Multiple Primary and Histology coding rules to be used rather than the Solid Tumor Rules?
According to the general instructions, when are the 2007 Multiple Primary and Histology coding rules to be used rather than the Solid Tumor Rules?
In a scenario where a physician suggests coding a more specific histology than what is available in the provided documentation, what should the registrar do?
In a scenario where a physician suggests coding a more specific histology than what is available in the provided documentation, what should the registrar do?
According to the general instructions, what is the significance of the WHO Classification of Tumors books (blue books) in the context of the Solid Tumor Rules?
According to the general instructions, what is the significance of the WHO Classification of Tumors books (blue books) in the context of the Solid Tumor Rules?
In the context of annual revisions to the Solid Tumor Rules, what action is recommended for previous versions of the manual?
In the context of annual revisions to the Solid Tumor Rules, what action is recommended for previous versions of the manual?
The Cancer Pathology Coding Histology and Registration Terminology (Cancer PathCHART) initiative aims primarily to:
The Cancer Pathology Coding Histology and Registration Terminology (Cancer PathCHART) initiative aims primarily to:
The technical questions should be submitted to a SEER Registrar on a SEER website, questions should incorporate ______ and ______?
The technical questions should be submitted to a SEER Registrar on a SEER website, questions should incorporate ______ and ______?
Which factor is most critical in determining primary site code C509, Breast NOS, according to the instructions?
Which factor is most critical in determining primary site code C509, Breast NOS, according to the instructions?
When assigning primary site codes for breast cancer, which term indicates that the diagnosis must be coded to the quadrant of breast in which the underlying tumor is located?
When assigning primary site codes for breast cancer, which term indicates that the diagnosis must be coded to the quadrant of breast in which the underlying tumor is located?
What is the appropriate action when a tumor overlaps quadrants or subsites?
What is the appropriate action when a tumor overlaps quadrants or subsites?
If a patient has Invasive carcinoma, NST with lobular features, how the term(s) should be coded?
If a patient has Invasive carcinoma, NST with lobular features, how the term(s) should be coded?
How to determine which rule set to use when the original tumor diagnosed before 1/1/2018 and a subsequent tumor diagnosed 1/1/2018 or later in the same primary site?
How to determine which rule set to use when the original tumor diagnosed before 1/1/2018 and a subsequent tumor diagnosed 1/1/2018 or later in the same primary site?
Within the context of the Solid Tumor Rules' guidelines, when confronted with a scenario involving simultaneous tumors that are subsequently identified, what coding approach should be implemented?
Within the context of the Solid Tumor Rules' guidelines, when confronted with a scenario involving simultaneous tumors that are subsequently identified, what coding approach should be implemented?
According to the 'How to Use the Multiple Primary Rules' section, which factor is decisive in choosing the appropriate module for determining the number of tumors?
According to the 'How to Use the Multiple Primary Rules' section, which factor is decisive in choosing the appropriate module for determining the number of tumors?
In a circumstance where the pathologist employs the terminology 'Invasive carcinoma with ductal and lobular features,' which particular nomenclature holds significance?
In a circumstance where the pathologist employs the terminology 'Invasive carcinoma with ductal and lobular features,' which particular nomenclature holds significance?
According to the general instructions, when are the terms, tumor, mass, tumor mass, lesion, neoplasm and nodule disregarded?
According to the general instructions, when are the terms, tumor, mass, tumor mass, lesion, neoplasm and nodule disregarded?
In what circumstances do the Solid Tumor Rules specify that 'And' and 'with' are to be regarded as synonyms?
In what circumstances do the Solid Tumor Rules specify that 'And' and 'with' are to be regarded as synonyms?
In which situation does a pathologist's comparison of slides become the ONLY accepted exception for a new primary or recurrence?
In which situation does a pathologist's comparison of slides become the ONLY accepted exception for a new primary or recurrence?
How should a registrar code the subtype/variant of a breast tumor when examining the histology?
How should a registrar code the subtype/variant of a breast tumor when examining the histology?
What scenario exemplifies the application of the 2007 Multiple Primary and Histology coding rules instead of the Solid Tumor Rules?
What scenario exemplifies the application of the 2007 Multiple Primary and Histology coding rules instead of the Solid Tumor Rules?
You have a patient with a recent invasive ductal carcinoma of the right breast. However, 7 years ago they were diagnosed with a ductal carcinoma in situ (DCIS). In terms on multiple primary rules, what factor is weighed the most when assessing primary tumor classifications?
You have a patient with a recent invasive ductal carcinoma of the right breast. However, 7 years ago they were diagnosed with a ductal carcinoma in situ (DCIS). In terms on multiple primary rules, what factor is weighed the most when assessing primary tumor classifications?
When are the 2018 or later Solid Tumor Rules to be used, according to guidance from NCI SEER?
When are the 2018 or later Solid Tumor Rules to be used, according to guidance from NCI SEER?
According to the Solid Tumor Rules regarding lung neoplasms, which documentation aspect is MOST crucial for accurate primary site coding?
According to the Solid Tumor Rules regarding lung neoplasms, which documentation aspect is MOST crucial for accurate primary site coding?
According to the Solid Tumor Rules, what coding action should be taken when the documentation indicates a primary lung tumor is located in 'Lung NOS'?
According to the Solid Tumor Rules, what coding action should be taken when the documentation indicates a primary lung tumor is located in 'Lung NOS'?
In a scenario with multiple tumors in the lung, which factor determines whether to abstract a single primary tumor versus multiple primaries, as emphasized in the Solid Tumor Rules?
In a scenario with multiple tumors in the lung, which factor determines whether to abstract a single primary tumor versus multiple primaries, as emphasized in the Solid Tumor Rules?
According to the general instructions, what signifies that a primary site code C340, Main Bronchus, should be assigned?
According to the general instructions, what signifies that a primary site code C340, Main Bronchus, should be assigned?
According to the Solid Tumor Rules, which of the following is considered an equivalent term for 'Tumor'?
According to the Solid Tumor Rules, which of the following is considered an equivalent term for 'Tumor'?
In the context of coding for cancer, the terms 'And' and 'with' are considered synonyms under what specific circumstance?
In the context of coding for cancer, the terms 'And' and 'with' are considered synonyms under what specific circumstance?
When are terms like 'tumor,' 'mass,' 'lesion,' and 'nodule' disregarded according to the Solid Tumor Rules?
When are terms like 'tumor,' 'mass,' 'lesion,' and 'nodule' disregarded according to the Solid Tumor Rules?
According to the Solid Tumor Rules, which of the following is an interchangeable term for 'Simultaneous'?
According to the Solid Tumor Rules, which of the following is an interchangeable term for 'Simultaneous'?
Which of the following documentation elements is LEAST relevant when determining a code from terms in the Solid Tumor Rules?
Which of the following documentation elements is LEAST relevant when determining a code from terms in the Solid Tumor Rules?
When determining the primary site for breast cancer, which factor indicates that the diagnosis must be coded to the quadrant of the breast in which the underlying tumor is located?
When determining the primary site for breast cancer, which factor indicates that the diagnosis must be coded to the quadrant of the breast in which the underlying tumor is located?
What is the significance of using the "clock" diagram in the context of breast cancer coding, as per guidance in the Solid Tumor Rules?
What is the significance of using the "clock" diagram in the context of breast cancer coding, as per guidance in the Solid Tumor Rules?
Why is grading of DCIS (Ductal Carcinoma In Situ) emphasized in the current Breast WHO edition?
Why is grading of DCIS (Ductal Carcinoma In Situ) emphasized in the current Breast WHO edition?
What is the recommended approach when examining the histology of a breast tumor to code the subtype/variant if the percentage is NOT stated?
What is the recommended approach when examining the histology of a breast tumor to code the subtype/variant if the percentage is NOT stated?
How are synonyms for the NOS term in Solid Tumor histology tables different from the CPC*Search Tool?
How are synonyms for the NOS term in Solid Tumor histology tables different from the CPC*Search Tool?
Which scenario exemplifies an extreme challenge in fulfilling a cancer registrar's duty of care, potentially leading to severe legal and ethical repercussions?
Which scenario exemplifies an extreme challenge in fulfilling a cancer registrar's duty of care, potentially leading to severe legal and ethical repercussions?
What is the MOST critical consideration that a cancer registrar should prioritize to align with ethical guidelines and legal requirements, while leveraging technological advancements in data management?
What is the MOST critical consideration that a cancer registrar should prioritize to align with ethical guidelines and legal requirements, while leveraging technological advancements in data management?
Which of the following scenarios represents a breach of legal and ethical standards related to patient data, potentially subjecting a cancer registrar to liability, as outlined by HIPAA and professional codes of conduct?
Which of the following scenarios represents a breach of legal and ethical standards related to patient data, potentially subjecting a cancer registrar to liability, as outlined by HIPAA and professional codes of conduct?
In the context of upholding patient data privacy and confidentiality, what action violates the ethical principles expected of cancer registrars?
In the context of upholding patient data privacy and confidentiality, what action violates the ethical principles expected of cancer registrars?
What measure should a cancer registrar take to ensure adherence to HIPAA regulations and protection of patient privacy when implementing a new electronic health record (EHR) system?
What measure should a cancer registrar take to ensure adherence to HIPAA regulations and protection of patient privacy when implementing a new electronic health record (EHR) system?
When using a cloud-based service provider for storing cancer registry data, what action best demonstrates a cancer registrar's commitment to adhering to legal and ethical guidelines regarding data security?
When using a cloud-based service provider for storing cancer registry data, what action best demonstrates a cancer registrar's commitment to adhering to legal and ethical guidelines regarding data security?
A cancer registrar discovers that a local news outlet has requested cancer incidence data for a specific, small geographic area. Which action aligns BEST with ethical and legal obligations?
A cancer registrar discovers that a local news outlet has requested cancer incidence data for a specific, small geographic area. Which action aligns BEST with ethical and legal obligations?
How to reconcile the increasing demand for detailed cancer registry data in research with the necessity of ensuring patient privacy?
How to reconcile the increasing demand for detailed cancer registry data in research with the necessity of ensuring patient privacy?
What would be the most appropriate first action for a cancer registrar to do if they are asked to provide expertise in a legal case involving allegations of improper health record access?
What would be the most appropriate first action for a cancer registrar to do if they are asked to provide expertise in a legal case involving allegations of improper health record access?
What decision MOST effectively addresses the long-term confidentiality of registries in a data breach?
What decision MOST effectively addresses the long-term confidentiality of registries in a data breach?
Flashcards
Solid Tumor Rules Updates
Solid Tumor Rules Updates
The most recent version should be used as it reflects new terminology, codes, and changes to keep up with current practice.
Ask a SEER Registrar
Ask a SEER Registrar
A way to get assistance with technical questions related to the manual on the SEER website.
Cancer PathCHART
Cancer PathCHART
This is a single source of truth standards for tumor site, histology, and behavior coding across all standard setters.
CPC*Search Tool
CPC*Search Tool
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Rules for hematopoietic primaries
Rules for hematopoietic primaries
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Purpose of Solid Tumor Rules
Purpose of Solid Tumor Rules
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Tumors in different years
Tumors in different years
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Histology Rules
Histology Rules
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Multiple Primary Rules
Multiple Primary Rules
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Equivalent Terms and Definitions
Equivalent Terms and Definitions
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Rules Hierarchical
Rules Hierarchical
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Compare Slides
Compare Slides
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About Cancer PathCHART
About Cancer PathCHART
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CPC and rules
CPC and rules
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2025 Consolidated Manual
2025 Consolidated Manual
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Multiple Histologies Described
Multiple Histologies Described
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Primary Site Codes for Breast (C500-C509)
Primary Site Codes for Breast (C500-C509)
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Lung Primary Site - C340
Lung Primary Site - C340
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Lung Primary Site - C341
Lung Primary Site - C341
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Lung Primary Site - C342
Lung Primary Site - C342
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Lung Primary Site - C343
Lung Primary Site - C343
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Lung Primary Site - C348
Lung Primary Site - C348
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Lung Primary Site - C349
Lung Primary Site - C349
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Recurrence
Recurrence
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Simultaneous / Synchronous
Simultaneous / Synchronous
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Solid Tumor Rules Purpose
Solid Tumor Rules Purpose
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Timing Rules for Abstracts
Timing Rules for Abstracts
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Contiguous tumor
Contiguous tumor
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Multiple primaries
Multiple primaries
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Overlapping tumor
Overlapping tumor
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Non-contiguous
Non-contiguous
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Paired organ/site
Paired organ/site
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Cancer Registry
Cancer Registry
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Cancer Registrar
Cancer Registrar
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Types of Cancer Registries
Types of Cancer Registries
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Standard Setting Organizations
Standard Setting Organizations
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IACR
IACR
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FERPA
FERPA
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HIPAA
HIPAA
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HITECH Act
HITECH Act
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Patient Privacy
Patient Privacy
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Duty of Care
Duty of Care
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Study Notes
- Role of cancer registrars is on the frontline of cancer surveillance, collecting data on diagnosis, treatment, and survivorship.
- Cancer registry data is considered an early example of big data, used to reveal patterns and trends.
- Health registries focus on data collection and interpretation for health maintenance, understanding, and disease treatment, they accumulate information on individuals with specific health conditions or procedures.
- Electronic medical record (EMR) and electronic health record (EHR) are often used interchangeably as digital records of patient health information.
- EMRs are digital versions of a patient's chart from a specific practice.
- EHRs contain patient records from multiple practices and facilities, providing a broader view of a patient’s health.
- Cancer registries are information systems for collecting, managing, and analyzing data on persons diagnosed with cancer & other neoplastic diseases.
- Cancer registries have transitioned from paper-based to electronic methodologies.
- The First mention of mortality from cancer was in 1629 in England, the first data collection was in 1728 in London.
- Death registration was implemented in the US in 1839.
- An Italian survey in Verona, 1842, noted cancer differences between nuns and married women.
- Frederick L Hoffman published worldwide cancer statistics in 1915.
- The US Census Bureau began analyzing cancer mortality using 1914 data.
- The oldest modern cancer registry is Hamburg, Germany, which began in 1926.
- In 1929, the Hamburg registry became the follow-up program of the Hamburg Public Health Department.
- The first US site-specific cancer registry was a bone sarcoma registry in 1926.
- Population-based cancer registration began in the US in 1935 in Connecticut.
- The National Cancer Act of 1937 established the National Cancer Institute (NCI).
- The Danish Cancer Registry, founded in 1942, is the oldest functioning national registry, which has voluntary physician reporting.
- Collection of patient follow-up data and accurate evaluation was defined in mortality statistics with the incidence of malignant neoplasms.
- Cancer registries have expanded since the 1940s.
- Registries also track data beyond cancer, it also tracks HIV, trauma, and birth defects.
- The Central Brain Tumor Registry of the United States (CBTRUS) is a non-profit collecting and disseminating data on brain and central nervous system tumors.
- The American College of Surgeons (ACOS) maintains the National Trauma Data Bank (NTDB), the largest US trauma registry.
- The American Burn Association (ABA) uses its burn care quality platform to improve burn care.
- The CDC and NIOSH launched the first nationwide firefighter cancer registry, and the Firefighter Cancer Registry Act of 2018 required CDC to develop and maintain a voluntary registry of firefighters.
- The American College of Surgeons (ACOS) COC adopted a policy to encourage hospital-based cancer registries in 1956, results are reviewed to the improve treatment and understanding.
- The National Association of Cancer Registries (IACR) was formed in 1966, and since then there have been increasing funding of cancer research.
- US National Cancer Act of 1971 created the Surveillance, Epidemiology, and End Results (SEER) Program, and authorized the expansion of cancer research.
- The seer data collected from 1973 included Connecticut, Iowa, Utah & Hawaii
- The National Tumor Registrars Association (NTRA) was formed in 1974 to develop training programs for registrars, it was renamed the National Cancer Registrars Association (NCRA).
- The North American Association of Central Cancer Registries (NAACCR) was founded was founded in 1987 to develop and promote population research and establish data standards nationally.
- The national program of cancer registries, NPCR, was created in 1992 managed by the CDC.
- The NCRA embarked and detailed Distinct occupation code to ensure medical registrars and cancer registrars.
- In 2017, The Bureau of Labor Statistics announced this new code, in the 2020 census.
- The Standard Occupational Classification (SOC) System is a federal system of defining workers by federal agencies classifying worker categories to collect, calculate, or disseminate data.
- The new occupation code reflects the increased use of data cancer registrars play in collecting.
- The International Agency for Research on Cancer (IARC) has worked to create high quality population-based registries.
- In cancer registration history cancer recorded as death cause in 1629, systematic collection in 1728, death registration in 1839, the first population survey in 1842 by Physician, and the American Cancer Society in 1913.
- Types of cancer registries in the US are Hospital, population-based, and special registries,
- Hospital registries maintain data on cancer patients at the hospital, they improve care ad research there.
- Population-based registries record cancer cases in a geographic area for epidemiology and public health purposes.
- Special registries focuses on a specific cancer like a category of bone cancer.
- Central Cancer Registries are regional/state population registries of cancer patients.
- All 50 states require cancer case reporting into a central cancer registry
- Facilities report cancer cases/data to their State Central Registry or cancer patients diagnosed/treated are required to report cancer.
- Registries receive funds/report data to CDC NPCR (National Program of Cancer Registries) and NCI Surveillance. Epidemiology and End Results Program (SEER).
- US Central Cancer also volunteer report data to NAACCR.
- Most hospitals seek accreditation from the COC.
- NCDB, or National Cancer Database is data reported by registrars, to the C. O. C in hospitals.
- The NCDSB is managed by the ACOS and C. ACS, that tracks malignant and central nervous tumors, it represents 70% of diagnosed nationwide, or more over 34 milllion, cancer.
- Report to the Department of Defense, (DOD) and Veterans Affairs (VA), cancer is collected by VA Central Cancer Registry.
- ACTUR (Automated Central Tumor Registry) Has been used for many years for central DOD repository.
Role of the Cancer Registrar
- Cancer registrars are the first link. They ensure the quality of the data on an individual cancer level as well.
- They collect information from medical records, and most NCRA members work there.
- The facility size cancer data to be used is most impacted to cancer conference for services to patients.
- The cancer conference is weekly or monthly, including physicians and administrators, they are often managed my registrars.
- The cancer committee leads programs on the multidisciplinary full scope of cancer services.
- The ODS credential/certification is important role for cancer. Data in many registry, especially NAACCR and hospital cancer facilities.
- In multiple facilities/treatment centers must consolidate each case.
Other notes
- Today's cancer registrations face change, its an inherent part of it.
- The Commission on Cancer, COC is from ACOS (American College of Surgeons).
- The National Program of Cancer Registries (NPCR) is from CDC (Centers for Disease Control and Prevention).
- The SEER Program (Surveillance, Epidemiology, and End Results) is from NCI (National Cancer Institute).
- NAACCR - sets data standards for cancer registration.
- ACOS COC facilities have standards, while NCI seer & CDC have contributed and provide standards and uniform data standards for registration.
- Standards are provided to disease within cancer specific set by American Joint Committee on pathology and Word Health Organization (WHO).
- 7 Collaborative authorities on cancer cancer and quality is provided from ACOS.
- The accreditation include Breast Programs, American Joint Committee on Cancer and surgery is standards is a collaborative authority to improve cancer
- ACOS started treatment of malignant disease.
- The NCCR is a program and the improvement and quality is a consortium, the largest standardization process and accreditation was for facilities.
- There are are 100 individual participants from medicine is from members involved that has one of their goals set to improve the analysis quality and data.
Groups HLSG and MLTG
- Coordination is between industry and government for communication.
- To have change management the HLSG and are not part of anyone company.
- NAPRC program is from optimizing from consortium (OSTRICH).
- Cancer MDT (multidisciplinary program) that overseen that programs and provide opportunity for cancer.
- Jointly recognized oncology for data source from registry is NCDS (National Cancer Registry Database).
- AJCC maintains promotion and the development for evidence on classification.
Prevention, NCRI
- NCRI. (National Cancer Research Institute) Improves public data from cancer research as part of for science (PCORI).
- C.S.S.P- is to define the surgery standards.
- The CDC is to support America with the disease, cancer programs from NPCR.
Operations and admistration from the CDC
- Success data factors is based based on cancer factors the state is authorized that CDC.
- Cancer must follow roles from management training.
- Information CDC comes CDC program and is is assigned with consultants.
- Data was measured with NPCR for the highlight for areas to benefits for cancer work.
- NCRA the quality control in every registry.
NCRA is committed to provide a nonprofit of the organizations
- NCRA is largest medical member in world and education training is available.
- To to empower registry in innovation advocacy credential/strategy.
- As that is is disciplinary membership provides services
- NCPR has great great work force in salary or workforce study.
- The (SOC is labor code in the Bureau of Labor. Statistics census.
- AHIMA, Seer & COC all provides meetings with NCRA.
- NCRA Provides funds for the of four goals maintaining to support registry.
- The over arching support and message long sustained from to be a better of the community’s.
- The OVAC ( One voice. Against Cancer). </existing_notes>
Cancer Registries and Registrars
- Cancer registrars are healthcare professionals who collect detailed information on cancer diagnosis, treatment, and survivorship, forming the cancer registry system's foundation.
- They are on the frontline of cancer surveillance, providing data essential for healthcare providers and officials to monitor and improve cancer treatment, conduct research, and target prevention programs.
- Cancer registry data is a significant example of "big data," allowing the analysis of trends, patterns, and associations in cancer incidence and outcomes.
- Health registries are structured systems for the collection, distribution, and analysis of health data on individuals, central to maintaining health and understanding/treating disease.
- Registries accumulate data on individuals sharing a specific health condition or procedure, allowing for examination of trends across populations and geographic areas.
- Electronic Medical Records (EMRs) and Electronic Health Records (EHRs) are digital records of patient health information, with EMRs representing a single practice's records and EHRs encompassing records from multiple sources.
- Registries have evolved from paper-based to electronically-based data collection.
Historical Development
- Cancer was first documented as a cause of death in 1629 in England, with systemic data collection starting in London in 1728.
- The first Cancer Registry began the notion that the cancer control also impacted by public health and economic.
- Death registration was implemented in the United States in 1839.
- An Italian physician surveyed the population of Verona in 1842, noting differences in cancer rates between nuns and married women.
- Frederick L. Hoffman published a compilation of cancer statistics from around the world in 1915.
- The US Census Bureau began analyzing cancer mortality using the 1914 data.
- The Hamburg Cancer Registry, established in 1926, is the oldest example of a modern cancer registry,.
- The first site-specific cancer registry in the United States focused on bone sarcoma in 1926.
- Population-based cancer registration began in the United States in 1935 in Connecticut.
- The National Cancer Act of 1937 established the National Cancer Institute (NCI) to promote research.
- The Danish Cancer Registry, established in 1942, is the oldest functioning registry covering a national population.
- Cancer registries have grown in number since the 1940s.
Types of Registries
- US cancer registries include hospital registries (focusing on patient care and research within a facility), population-based registries (for epidemiology and public health across a geographic area), and special registries (concentrating on specific cancers).
- Central Cancer Registries are regional or state-level population-based registries that maintain data on all cancer patients within their geographic area.
- All 50 states have laws requiring the reporting of cancer cases to central cancer registries.
- Facilities that diagnose or treat cancer patients are required to report cancer cases and data to their central registry.
- Registries receive funding from and report data to either CDC NPCR or NCI SEER. US Central Cancer Registries voluntairly report data to NAACCR.
- Many hospitals seek accreditation from the COC for quality cancer care.
The Role and Responsibilities
- Cancer registrars are the first link in the cancer registry system.
- Most NCRA members work in the hospital.
- Cancer registrars ensure the quality of the data
- Cancer registrars must provide facilities, depending on cancer data to be used, significant impact to cancer conference provided for services to patients.
- Attending to a cancer conference for services provided weekly or monthly with physicians and administrators is important to be managed by the registrars often. Other components involve
- Cancer Registrist lead programs, multidiplinary, oversee full scope of cancer services.
- The ODS credential/certification is an important designation held by registrars, especially those working within NAACCR and hospital cancer facilities
Changes and advancements In Future cancer registrations
- There are growing treatment and changes with dynamic progress.
- The COD and NPCR facilities and contribution are maintained.
- There has contributed standards for registration.
- NCRA Provide medical is that data, the largest standardization, and for facilities with quality.
Additional Programs
- The CDC (Centers for Disease Control) manages NCCR. The NPCR improves public data from cancer research as part of science from PCORI which sets a lot of C. S. S.P, which helps the data surgery standards. From. AJCC maintains classification.
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Key Organizations
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