28 Questions
Where was the data for the study obtained from?
It was acquired from the Netherlands Autism Register (NAR), which is a longitudinal database on children and adults with autism.
What type of data does the Netherlands Autism register collects from its members?
Autism-related topics in a form of online questionnaires.
How often do respondents receive a request to fill in an online questionnaire from the Netherlands Autism Register?
Yearly
When was the data used in this study collected?
2019
What is the focus among NAR adult autistic participants?
Portrayal and societal inclusion of autism
What was the main result of the study?
Counter to the study hypotheses and expectation, a majority of self-reporting autistic adults and parents of a child with autism demonstrated a PFL preference.
What type of test was used to check whether terminology preference differed for self-reporting autistic adults and parents?
Chi-square test
Which group in the study dominated PFL preference?
A PFL preference was more dominant in the group of parents (82.5%) compared to the adults with autism (68.3%, χ2(2) = 22.27, p < .001), yet both groups showed a preference for PFL.
In the multinomial regression model, what was the reference category?
PFL
What percentage of parents demonstrated a PFL preference?
82.5%
What was the significance level set at in the study?
0.05
What percent of both self-reporting autistic adults and parents demonstrated a PFL preference?
71.4%
What was the predictor variable entered for the adult group with autism?
Participant's gender, age, intellectual ability, degree of autism traits (AQ) and educational level
What factors were controlled for in the analysis of autistic adults' terminology preference?
gender, age, intellectual ability, degree of autism traits (AQ), and educational level
How did the preference for PFL vary between autistic adults and parents?
A higher percentage of parents (82.5%) preferred PFL compared to autistic adults (68.3%)
What was the purpose of using a multinomial regression model in the study?
To predict autism terminology preference (PFL/IFL/other)
How does the NAR ensure representation of the autistic community in its research?
The NAR has autistic team members involved in all stages of research
What statistical analysis was used to predict autism terminology preference for adults and parents separately?
Multinomial logistic regression analyses
What type of participants are represented in the NAR's database?
Children and adults with autism, or their parents/legal representatives
What statistical test was used to compare terminology preferences between self-reporting autistic adults and parents?
Chi-square test
What were the results in the study for the preference of either PFL or IFL for autistic adults?
Autistic adults preferred PFL (68.7%) vs. IFL (22.7%) & other (9%).
What were the results in the study for the preference of either PFL or IFL for autistic adults?
Parents of autistics preferred PFL (82.5%) vs. IFL (11.9%) & other (5.6%).
What factors contribute to the preference of either PFL or IFL?
In the group of autistic adults: younger age, higher IQ and more autistic traits = IFL preference. No effect of gender or education level. Higher IQ and high educational degree (vs. middle education) = other terminology compared to PFL. No associations in the group of parents.
What was the outcome of the analysis of autism terminology preference for self-reporting autistic adults and parents separately?
A significant difference in preference between the two groups
What proportion of autistic adults demonstrated a PFL preference, which is significantly different from the proportion of parents who did?
68.3% of autistic adults
What was the reason for including the 'other' category in the open answers?
To account for participants with no clear preference for PFL or IFL
What characteristic of the autistic adults was NOT included as a predictor in the multinomial regression model?
Parent's age
What was the purpose of controlling for multiple predictors in the multinomial regression model?
To account for potential confounding variables
This quiz is based on the Netherlands Autism Register (NAR) questionnaire, which focuses on autism-related topics. The questionnaire is completed by individuals with autism or their parents/legal representatives. The data is used to improve understanding and support for autism in the Netherlands.
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