Minimal Important Differences in Patient Reported Outcome Measures
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Questions and Answers

What is the name of the fatigue assessment tool validated in Italian cancer patients?

  • Fatigue Severity Scale (FSS)
  • Palliative Care Fatigue Scale (PCFS)
  • Oncology Fatigue Questionnaire (OFQ)
  • Brief Fatigue Inventory (BFI) (correct)

    • What is the purpose of a tailored activity pacing intervention in adults with osteoarthritis?

  • To improve sleep quality
  • To increase physical activity
  • To reduce pain and fatigue (correct)
  • To manage depression

    • Which study found a correlation between pain and fatigue in patients with cancer, patients with clinical depression, and community-dwelling adults?

  • Anderson et al. (2003) (correct)
  • Reyes-Gibby et al. (2003)
  • Murphy et al. (2010)
  • Brown et al. (2010)

    • In which population was the Brief Fatigue Inventory (BFI) validated by Shuman-Paretsky et al. (2014)?

    <p>Community-dwelling older adults</p> Signup and view all the answers

    What is the focus of the systematic review by Aslani et al. (2018)?

    <p>The measurement of fatigue in hemoglobinopathies</p> Signup and view all the answers

    What was the main factor contributing to the difference in time spent on activities between the USA and UK?

    <p>Traveling to, from, and waiting for transfusions</p> Signup and view all the answers

    What was the mean 'worst fatigue' score on transfusion days?

    <p>5.55 (SD 2.95)</p> Signup and view all the answers

    What was the minimum clinically important difference (MCID) in 'worst fatigue' scores?

    <p>1 point</p> Signup and view all the answers

    What was the trend in 'worst pain' scores from pre-transfusion to post-transfusion?

    <p>Significant decrease in pain scores</p> Signup and view all the answers

    What was the scale used to measure 'worst fatigue' and 'worst pain' scores?

    <p>0-10 scale, where 10 is the worst symptoms</p> Signup and view all the answers

    What is the average 'worst fatigue' score of individuals with TDT relative to transfusion day?

    <p>Around 5 points</p> Signup and view all the answers

    What is the mean time spent on disease management by individuals with TDT and their caregivers?

    <p>The exact time is not specified in the text</p> Signup and view all the answers

    What is the correlation between pain and fatigue in individuals with TDT?

    <p>Fatigue levels increase as pain levels increase</p> Signup and view all the answers

    What is the primary fatigue assessment tool used in this study?

    <p>Brief Fatigue Inventory (BFI)</p> Signup and view all the answers

    What is the purpose of activity pacing interventions in individuals with TDT?

    <p>The text does not mention activity pacing interventions</p> Signup and view all the answers

    What is the name of the item in the Brief Fatigue Inventory that assesses fatigue at its worst?

    <p>Fatigue at its Worst</p> Signup and view all the answers

    Which of the following studies examined the time spent on health-related activities in patients with chronic illness?

    <p>Time spent on health-related activities associated with chronic illness</p> Signup and view all the answers

    What is the name of the tool used to assess pain in patients with rheumatoid arthritis?

    <p>Brief Pain Inventory-Short Form</p> Signup and view all the answers

    Which of the following studies investigated the correlation between pain and fatigue in patients with inflammatory bowel disease?

    <p>Fatigue severity and factors associated with high fatigue levels in Korean patients with inflammatory bowel disease</p> Signup and view all the answers

    What is the name of the inventory that includes the 'Fatigue at its Worst' item, which is used to assess fatigue in patients with rheumatoid arthritis?

    <p>Brief Fatigue Inventory</p> Signup and view all the answers

    Why is it difficult to compare the results of fatigue in TDT with other studies?

    <p>Due to the lack of published studies on fatigue in TDT</p> Signup and view all the answers

    What was the pattern of pain experienced by individuals with TDT in the study?

    <p>Pain levels increased in the 5-day period leading up to transfusion and dropped in the 5-day post-transfusion period</p> Signup and view all the answers

    How do the overall HRQoL levels in this study compare to those reported in North America?

    <p>Worse than those reported in North America</p> Signup and view all the answers

    What is a potential target area for improvement in TDT care based on the study's findings?

    <p>Domain scores in physical functioning</p> Signup and view all the answers

    What is the similarity between the pattern of pain and the pattern of hemoglobin levels in TDT?

    <p>Both increase in the 5-day period leading up to transfusion and drop in the 5-day post-transfusion period</p> Signup and view all the answers

    What is the average 'worst pain' score relative to transfusion day?

    <p>5.0</p> Signup and view all the answers

    In diseases where time and disease burden are high, what is the level of fatigue typically observed?

    <p>Higher than in healthy controls</p> Signup and view all the answers

    What is the average time spent by people with chronic diseases on disease management?

    <p>At least 2 hours per day</p> Signup and view all the answers

    In the BPI-SF, what is the unit of measurement for 'worst pain' score?

    <p>Scale of 0-10</p> Signup and view all the answers

    What is a key driver of time burden alongside transfusions?

    <p>All of the above</p> Signup and view all the answers

    What is the primary purpose of the Brief Fatigue Inventory?

    <p>To rapidly assess fatigue severity in patients</p> Signup and view all the answers

    Which study introduced the Tran Qol, a disease-specific quality of life measure for patients with thalassemia major?

    <p>The study by Klaassen et al.</p> Signup and view all the answers

    What is the focus of the study by Mendoza et al. (1999)?

    <p>The rapid assessment of fatigue severity in cancer patients</p> Signup and view all the answers

    Which study validated the Brief Fatigue Inventory in a general population?

    <p>The study by Yun et al. (2008)</p> Signup and view all the answers

    What is the primary purpose of the digitized clinical trial?

    <p>To use smartphones for health research</p> Signup and view all the answers

    Which study found a correlation between pain and fatigue in patients with thalassemia?

    <p>None of the above</p> Signup and view all the answers

    What is the primary purpose of the electronic data collection system used in the study by Trachtenberg et al.?

    <p>To use electronic data collection to assess pain in thalassaemia</p> Signup and view all the answers

    Which study used a new disease-specific quality of life measure for patients with thalassemia major?

    <p>The study by Klaassen et al.</p> Signup and view all the answers

    What is the primary purpose of the study by Porter et al.?

    <p>To measure health-related quality of life, treatment satisfaction, adherence, and persistence in patients with iron overload</p> Signup and view all the answers

    Which study used the Brief Fatigue Inventory to assess fatigue in patients?

    <p>The study by Yun et al. (2008)</p> Signup and view all the answers

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