40 Questions
What is the name of the fatigue assessment tool validated in Italian cancer patients?
Brief Fatigue Inventory (BFI)
What is the purpose of a tailored activity pacing intervention in adults with osteoarthritis?
To reduce pain and fatigue
Which study found a correlation between pain and fatigue in patients with cancer, patients with clinical depression, and community-dwelling adults?
Anderson et al. (2003)
In which population was the Brief Fatigue Inventory (BFI) validated by Shuman-Paretsky et al. (2014)?
Community-dwelling older adults
What is the focus of the systematic review by Aslani et al. (2018)?
The measurement of fatigue in hemoglobinopathies
What was the main factor contributing to the difference in time spent on activities between the USA and UK?
Traveling to, from, and waiting for transfusions
What was the mean 'worst fatigue' score on transfusion days?
5.55 (SD 2.95)
What was the minimum clinically important difference (MCID) in 'worst fatigue' scores?
1 point
What was the trend in 'worst pain' scores from pre-transfusion to post-transfusion?
Significant decrease in pain scores
What was the scale used to measure 'worst fatigue' and 'worst pain' scores?
0-10 scale, where 10 is the worst symptoms
What is the average 'worst fatigue' score of individuals with TDT relative to transfusion day?
Around 5 points
What is the mean time spent on disease management by individuals with TDT and their caregivers?
The exact time is not specified in the text
What is the correlation between pain and fatigue in individuals with TDT?
Fatigue levels increase as pain levels increase
What is the primary fatigue assessment tool used in this study?
Brief Fatigue Inventory (BFI)
What is the purpose of activity pacing interventions in individuals with TDT?
The text does not mention activity pacing interventions
What is the name of the item in the Brief Fatigue Inventory that assesses fatigue at its worst?
Fatigue at its Worst
Which of the following studies examined the time spent on health-related activities in patients with chronic illness?
Time spent on health-related activities associated with chronic illness
What is the name of the tool used to assess pain in patients with rheumatoid arthritis?
Brief Pain Inventory-Short Form
Which of the following studies investigated the correlation between pain and fatigue in patients with inflammatory bowel disease?
Fatigue severity and factors associated with high fatigue levels in Korean patients with inflammatory bowel disease
What is the name of the inventory that includes the 'Fatigue at its Worst' item, which is used to assess fatigue in patients with rheumatoid arthritis?
Brief Fatigue Inventory
Why is it difficult to compare the results of fatigue in TDT with other studies?
Due to the lack of published studies on fatigue in TDT
What was the pattern of pain experienced by individuals with TDT in the study?
Pain levels increased in the 5-day period leading up to transfusion and dropped in the 5-day post-transfusion period
How do the overall HRQoL levels in this study compare to those reported in North America?
Worse than those reported in North America
What is a potential target area for improvement in TDT care based on the study's findings?
Domain scores in physical functioning
What is the similarity between the pattern of pain and the pattern of hemoglobin levels in TDT?
Both increase in the 5-day period leading up to transfusion and drop in the 5-day post-transfusion period
What is the average 'worst pain' score relative to transfusion day?
5.0
In diseases where time and disease burden are high, what is the level of fatigue typically observed?
Higher than in healthy controls
What is the average time spent by people with chronic diseases on disease management?
At least 2 hours per day
In the BPI-SF, what is the unit of measurement for 'worst pain' score?
Scale of 0-10
What is a key driver of time burden alongside transfusions?
All of the above
What is the primary purpose of the Brief Fatigue Inventory?
To rapidly assess fatigue severity in patients
Which study introduced the Tran Qol, a disease-specific quality of life measure for patients with thalassemia major?
The study by Klaassen et al.
What is the focus of the study by Mendoza et al. (1999)?
The rapid assessment of fatigue severity in cancer patients
Which study validated the Brief Fatigue Inventory in a general population?
The study by Yun et al. (2008)
What is the primary purpose of the digitized clinical trial?
To use smartphones for health research
Which study found a correlation between pain and fatigue in patients with thalassemia?
None of the above
What is the primary purpose of the electronic data collection system used in the study by Trachtenberg et al.?
To use electronic data collection to assess pain in thalassaemia
Which study used a new disease-specific quality of life measure for patients with thalassemia major?
The study by Klaassen et al.
What is the primary purpose of the study by Porter et al.?
To measure health-related quality of life, treatment satisfaction, adherence, and persistence in patients with iron overload
Which study used the Brief Fatigue Inventory to assess fatigue in patients?
The study by Yun et al. (2008)
A systematic review of minimal important differences in patient reported outcome measures, including pain rating and chronic illness. Quiz covers research studies on health-related activities and associated literature.
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