Podcast
Questions and Answers
What does the concept of 'expertise through experience' refer to in research involving individuals with lived experience?
What does the concept of 'expertise through experience' refer to in research involving individuals with lived experience?
Which of the following is considered a practical difficulty in involving lived experience in research?
Which of the following is considered a practical difficulty in involving lived experience in research?
What issue is associated with the misunderstanding that people with mental illnesses are universally more vulnerable psychologically and cognitively?
What issue is associated with the misunderstanding that people with mental illnesses are universally more vulnerable psychologically and cognitively?
What is the purpose of advance choice documents in research involving service users?
What is the purpose of advance choice documents in research involving service users?
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Which aspect of research does the concept of intersectionality highlight?
Which aspect of research does the concept of intersectionality highlight?
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What is the primary purpose of involving people with lived experience in research?
What is the primary purpose of involving people with lived experience in research?
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Which term best describes the collaborative model in which stakeholders participate throughout the research process?
Which term best describes the collaborative model in which stakeholders participate throughout the research process?
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What is a potential pitfall of public involvement in research?
What is a potential pitfall of public involvement in research?
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How does co-design differ from traditional research methods?
How does co-design differ from traditional research methods?
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What is meant by 'nothing about us, without us' in the context of research?
What is meant by 'nothing about us, without us' in the context of research?
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Which of the following best describes public engagement in research?
Which of the following best describes public engagement in research?
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Which of the following is NOT a role of service user involvement in research?
Which of the following is NOT a role of service user involvement in research?
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What can be a consequence of lack of support and training for participants involved in research?
What can be a consequence of lack of support and training for participants involved in research?
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What is a significant challenge when involving individuals with lived experience in the research process?
What is a significant challenge when involving individuals with lived experience in the research process?
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Which of the following concepts focuses on ensuring individuals have an equal say in the research process?
Which of the following concepts focuses on ensuring individuals have an equal say in the research process?
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What is a potential misconception regarding individuals with mental illness in the context of research?
What is a potential misconception regarding individuals with mental illness in the context of research?
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What issue arises from engaging service users in research only at the end phases?
What issue arises from engaging service users in research only at the end phases?
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What does the principle of intersectionality in research emphasize?
What does the principle of intersectionality in research emphasize?
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What is the main ethical principle highlighted in the context of involving people with lived experience in research?
What is the main ethical principle highlighted in the context of involving people with lived experience in research?
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What is a key benefit of incorporating service users in research activities?
What is a key benefit of incorporating service users in research activities?
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Which group is typically NOT included as participants in service user involvement?
Which group is typically NOT included as participants in service user involvement?
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Which of the following describes coproduction in research?
Which of the following describes coproduction in research?
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What is a potential consequence of tokenism in research involving lived experience?
What is a potential consequence of tokenism in research involving lived experience?
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Which aspect of research does public engagement primarily focus on?
Which aspect of research does public engagement primarily focus on?
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What does the term 'blurred boundaries' refer to in the context of service user involvement?
What does the term 'blurred boundaries' refer to in the context of service user involvement?
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Why is training and support crucial for participants in service user involvement?
Why is training and support crucial for participants in service user involvement?
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Study Notes
Participatory Practice in Research (PPI)
- PPI is a broad concept encompassing various levels of involvement, including consultation, aimed at improving research.
- Essential for securing funding; crucial in research design, involving stakeholders in determining research questions and methodology.
- Participants usually represent diverse groups including service users, staff, and relatives.
- PPI's core principle is "Nothing about us without us," emphasizing the right for people with lived experience to shape research impacting their lives.
Service User Involvement
- Service users can be directly involved in research, from designing data collection to analyzing data and report writing.
- Terminology includes peer researchers, service user researchers, survivor researchers, and lived experience researchers.
- Recruitment prioritizes relevant skills and experience alongside personal lived experience.
- Crucially, training and support are fundamental.
- Lived experience can become a criterion for recruiting research staff.
Co-production
- A collaborative approach; stakeholders work together throughout the research process, sharing power and responsibility for decision-making.
- A radical approach to research, moving beyond traditional approaches to research.
Participatory Research
- Research designs where researchers cede power to research participants (community members).
Co-design
- Applying co-production principles to design interventions and services.
Public Engagement
- Engaging non-specialists with specialists.
- Encompasses a range of activities from consultation to disseminating research outputs.
Research Impact
- Research impact extends beyond academia, influencing society and the economy.
Pitfalls in PPI
- Tokenism (insufficient authentic involvement).
- Lack of adequate support, training, and mentorship.
- Insufficient reimbursement.
- Potential tensions between collaboration and broader systems.
Co-production: A Lived Experience Perspective
- Improves research quality and impact.
- Challenges stigma and disempowerment.
- Involves people with lived experience in all stages of research; people with specific experiences have expertise through their experience.
- Aligns with person-centred care principles, ensuring holistic views and needs are met.
- Essential for ethical and socially just research.
Practical Difficulties
- Funding requirements; increasing emphasis on lived experience input.
- Resource limitations (financial, time, training).
- Accommodation for illness; ensuring lived experience isn't conflated with their condition.
- Prioritization issues; accommodating lived experience perspectives in research.
Issues
- Tokenism (tick-box approach, late integration of co-production).
- Vulnerability assumptions (misperceptions regarding mental illness vulnerability).
- Identity considerations (research backgrounds and lived experience can overlap).
- Hierarchy concerns (equal status within research).
- Representativeness concerns (diverse and inclusive representation).
Advance Choice Documents
- Planning for future treatment in case of illness recurrence.
- Embedding co-production principles.
Intersectionality
- Acknowledging intersecting privileges and power dynamics.
- Maintaining a broad perspective in research.
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Description
Explore the concept of Participatory Practice in Research (PPI) and its significance in involving service users in research design and implementation. Understand the importance of lived experience and collaboration in shaping research outcomes that impact diverse groups. This quiz covers terminology, levels of involvement, and the core principle of PPI.
