Ethics in Pediatric Medical Decisions
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Questions and Answers

What ethical consideration is primarily raised by the situation of the 7-year-old girl with end-stage cancer whose parents insist on resuscitative therapies?

  • The legality of stopping chest compressions
  • The child's right to refuse treatment
  • The necessity of mechanical ventilation in all cases
  • The parents' autonomy in decision-making (correct)

In the case of the 15-year-old Jehovah’s Witness, what principle is challenged regarding medical treatment?

  • Cultural beliefs can influence medical ethics (correct)
  • Emergency treatment must always override personal beliefs
  • All patients must accept blood products for survival
  • Autonomy of the patient is absolute

In the scenario of the 12-year-old boy with cancer, what cultural factor complicates the truth-telling in medical practice?

  • The potential for family conflict over the diagnosis
  • The child's age and understanding of his condition
  • The father's belief in parental duty to shield their child from pain (correct)
  • The overwhelming clinical evidence of the prognosis

Which ethical question arises regarding the obligation to provide food and water to a child in medical care?

<p>Does withholding food and water represent ethical neglect? (B)</p> Signup and view all the answers

What is a significant concern in the context of the debate over resuscitative therapies for critically ill children?

<p>The ethical implications of life-sustaining treatments against the wishes of the child (C)</p> Signup and view all the answers

What is the primary ethical consideration when making treatment decisions for children?

<p>The child’s best interests must be prioritized. (C)</p> Signup and view all the answers

Which population is considered particularly vulnerable due to socio-economic factors?

<p>Children with mental health concerns (A)</p> Signup and view all the answers

What role can parents typically play in healthcare decision making for their children?

<p>They act as appropriate surrogate decision makers. (D)</p> Signup and view all the answers

In pediatric palliative care, what is a significant challenge faced in decision-making?

<p>Balancing parental input with professional recommendations. (A)</p> Signup and view all the answers

Which of the following is an ethical challenge that may arise when a child wishes to keep information private?

<p>Assessing the child's developmental stage and maturity. (C)</p> Signup and view all the answers

Which criterion is emphasized as important for determining whether to provide therapy to a child?

<p>The child’s own voice and wishes. (C)</p> Signup and view all the answers

What best describes children’s overall legal position when it comes to pursuing their rights?

<p>Children require a surrogate to advocate for them. (A)</p> Signup and view all the answers

Which of the following groups is specifically recognized as multiply vulnerable?

<p>Children experiencing low income or poverty. (B)</p> Signup and view all the answers

What is the primary factor that determines a minor's healthcare decision-making capacity?

<p>The minor's evolving maturity (C)</p> Signup and view all the answers

What does the concept of child assent imply in healthcare decision-making?

<p>Children's understanding of their conditions should be optimized (D)</p> Signup and view all the answers

How should healthcare professionals approach children who have difficulty expressing their voices?

<p>By employing innovative communication strategies (A)</p> Signup and view all the answers

What ethical challenge relates to the confidentiality of pediatric care?

<p>Balancing confidentiality between children and parents (C)</p> Signup and view all the answers

According to the Canadian Pediatric Society, what is essential in providing information to patients and their families?

<p>It should be truthful, clear, and sensitive (C)</p> Signup and view all the answers

What is a critical aspect of respecting children's privacy in healthcare practice?

<p>Confidentiality must be upheld while also including parents (C)</p> Signup and view all the answers

What role do parents play in the communication of healthcare decisions for children?

<p>Parents can help translate children's voices (B)</p> Signup and view all the answers

What is the main concern when listening to children without consenting capacity?

<p>They need to be respected as individuals (D)</p> Signup and view all the answers

What is a condition that must be met to justify high dose sedation in palliative care?

<p>The nature of the act must be morally neutral or good. (B)</p> Signup and view all the answers

Which of the following is NOT a condition for ethically justifying the use of high dose sedation?

<p>The situation must be non-life-threatening. (C)</p> Signup and view all the answers

What stance is taken on withdrawing artificial nutrition and hydration in pediatric care?

<p>It is legally and ethically permissible when it's in the child's best interest. (B)</p> Signup and view all the answers

What is a misconception regarding the intention behind high dose sedation?

<p>Death should be seen as a primary goal. (A)</p> Signup and view all the answers

What should be considered when deciding to withdraw artificial nutrition and hydration from a pediatric patient?

<p>The best interest of the child must be evaluated. (B)</p> Signup and view all the answers

What are major unmet needs of disabled children linked to?

<p>Serious health and social consequences (D)</p> Signup and view all the answers

Which group of children is noted to have inadequate access to health and social services?

<p>Migrant newcomer children (B)</p> Signup and view all the answers

What is one of the ethical challenges faced in pediatric palliative care?

<p>Administering medications that may shorten life (B)</p> Signup and view all the answers

Under what circumstance can exceptions to the duty to provide life-sustaining treatment be made?

<p>When there is consensus on irreversible imminent death (B)</p> Signup and view all the answers

Which principle allows for actions with both good and bad consequences in pediatric palliative care?

<p>Principle of double effect (C)</p> Signup and view all the answers

What has been amplified during the COVID-19 pandemic according to the noted issues?

<p>Inequities in child health (C)</p> Signup and view all the answers

Which condition is not noted as a serious health risk for Indigenous children?

<p>Increased rates of obesity (C)</p> Signup and view all the answers

What limitation in pediatric palliative care can allow for better palliative treatment?

<p>Limitation allows greater palliative care (C)</p> Signup and view all the answers

Which of the following accurately reflects the legal status of Medical Aid in Dying for minors in Quebec?

<p>It is not permissible for minors. (B)</p> Signup and view all the answers

What right is explicitly recognized for minors under the 'An Act respecting end-of-life care'?

<p>The right to palliative sedation. (C)</p> Signup and view all the answers

In the context of pediatric palliative care, what is the primary role of healthcare providers regarding children's voices?

<p>To include children's concerns and recognize them as moral agents. (A)</p> Signup and view all the answers

What does the term 'Participatory Models' refer to in the context of pediatric ethics?

<p>Engaging young people in discussions about their concerns and rights. (C)</p> Signup and view all the answers

What is NOT a key feature of the 'An Act respecting end-of-life care' in Quebec relevant to minors?

<p>Legalization of euthanasia. (C)</p> Signup and view all the answers

What is an important consideration in ethics discussions when caring for young patients?

<p>Incorporating the perspectives and values of the nursing team. (A)</p> Signup and view all the answers

How does the Hermeneutical Rapprochement Framework assist in pediatric ethics?

<p>By facilitating understanding of diverse socio-historical perspectives. (B)</p> Signup and view all the answers

What critical element should be recognized when addressing children's rights in healthcare decisions?

<p>The significance of children's interests and agency. (B)</p> Signup and view all the answers

Which of the following statements about palliative care for minors is accurate?

<p>Palliative care can compromise vital signs but is legal for minors. (C)</p> Signup and view all the answers

What is a significant outcome of recognizing young people's agency in an ethical context?

<p>Improved inclusion of children's perspectives in policy-making. (A)</p> Signup and view all the answers

What does the term 'tragic choices' refer to in pediatric critical care?

<p>Choosing among options that all have negative consequences (D)</p> Signup and view all the answers

How can environmental factors impact disabled children according to the content?

<p>They can disable children if changes are not made to improve accessibility. (D)</p> Signup and view all the answers

What common outcome arises from ethical dilemmas in pediatric critical care?

<p>Relational tensions and conflict between stakeholders (D)</p> Signup and view all the answers

What is commonly misunderstood about the quality of life of disabled children?

<p>Their lives are often viewed as less valuable than those without disabilities. (C)</p> Signup and view all the answers

What ethical challenge does the notion of 'moral distress' primarily address in pediatric nursing?

<p>The emotional conflict experienced when one is unable to act according to their values. (D)</p> Signup and view all the answers

What is a vital consideration when determining the best interests of a child in medical decision-making?

<p>The child's intrinsic value and dignity (D)</p> Signup and view all the answers

Which group is noted as particularly vulnerable due to cultural and social factors?

<p>Migrants and Indigenous children (A)</p> Signup and view all the answers

Which ethical challenge is typically encountered when there are conflicting opinions between parents and healthcare providers?

<p>Ensuring confidentiality of the child's wishes (B)</p> Signup and view all the answers

What role do parents typically hold in healthcare decisions for their children according to pediatric ethical norms?

<p>Appropriate surrogate decision-makers prioritizing the child’s interests (A)</p> Signup and view all the answers

Which ethical norm emphasizes the significance of the child's voice in treatment decisions?

<p>The voice of the child should be included wherever possible (A)</p> Signup and view all the answers

What primary concern is raised in pediatric palliative care when discussing a child’s prognosis?

<p>The possibility of severe unintended consequences (B)</p> Signup and view all the answers

What is a common misconception regarding the decision to withdraw artificial nutrition and hydration in pediatric care?

<p>Withdrawing care is equated with euthanasia (A)</p> Signup and view all the answers

What is emphasized as critical in ensuring that children's rights are respected in healthcare decisions?

<p>Children's intrinsic value and dignity must be recognized (A)</p> Signup and view all the answers

What is the role of parents regarding consent for healthcare decisions for minors under the Civil Code of Quebec?

<p>A minor 14 years or older can give consent independently. (C)</p> Signup and view all the answers

How does the presumption of capacity apply to minors in healthcare decision-making?

<p>Minors may be capable regarding some treatments while incapable regarding others. (C)</p> Signup and view all the answers

What concept suggests that children should be involved in healthcare decisions affecting them?

<p>Child Assent (D)</p> Signup and view all the answers

Under the Health Care Consent Act (Ontario), what is necessary for a person to be deemed capable of making treatment decisions?

<p>Understanding relevant information and its outcomes. (B)</p> Signup and view all the answers

What is a major ethical challenge in considering the voice of children in healthcare?

<p>Healthcare professionals often prioritize parental authority over child's voice. (C)</p> Signup and view all the answers

What is the implication of benevolent medical paternalism in pediatric healthcare?

<p>It allows healthcare providers to make decisions believed to be in the best interest of the child. (C)</p> Signup and view all the answers

What aspect of child agency is increasingly recognized in the decision-making process in healthcare?

<p>Children's voices should be integrated into the consent process. (D)</p> Signup and view all the answers

What does the term 'voice of the child' signify in the context of pediatric healthcare?

<p>The acknowledgment and consideration of children's preferences and feelings. (B)</p> Signup and view all the answers

What are the conditions under which confidentiality may be breached in pediatric care?

<p>Client consent, serious bodily harm risk, public interest (D)</p> Signup and view all the answers

In pediatric care, what is a critical condition that requires consideration before disclosing sensitive information?

<p>Clear risk to identifiable persons (C)</p> Signup and view all the answers

Which ethical consideration may arise regarding the treatment of newborns with severe health issues?

<p>Standards for limiting treatment based on the newborn's potential (C)</p> Signup and view all the answers

What is a potential misconception surrounding the treatment of premature babies compared to older children?

<p>They are often viewed as having a lesser moral status (A)</p> Signup and view all the answers

When a child expresses a desire for confidentiality around healthcare decisions, what ethical challenge arises?

<p>Balancing the child's autonomy with parental rights (A)</p> Signup and view all the answers

What is considered an imminent danger in the context of pediatric confidentiality exceptions?

<p>Imminent risk of serious bodily harm or death (D)</p> Signup and view all the answers

What factor can create ethical dilemmas when treating children with long-term disabilities?

<p>The child's potential for normalcy over time (C)</p> Signup and view all the answers

Which principle is often debated in the context of pediatric palliative care regarding actions that may have both beneficial and harmful consequences?

<p>Principle of double effect (D)</p> Signup and view all the answers

What is a condition under which life-sustaining treatment may be ethically withheld in pediatric care?

<p>There is consensus on irreversible imminent death. (A)</p> Signup and view all the answers

What principle allows for actions that may have both beneficial and harmful consequences in pediatric palliative care?

<p>Principle of double effect (D)</p> Signup and view all the answers

In pediatric palliative care, what ethical question arises regarding the use of palliative sedation?

<p>Is it permissible to intentionally shorten life? (B)</p> Signup and view all the answers

What major issue has been exacerbated during the COVID-19 pandemic regarding children?

<p>Amplified inequity in health access. (B)</p> Signup and view all the answers

Which group of children has been identified as having serious health risks including increased rates of infant mortality?

<p>Indigenous children (D)</p> Signup and view all the answers

Under which situation can exceptions to the duty to provide life-sustaining treatment be justified?

<p>When treatment is deemed to be ineffective or harmful. (C)</p> Signup and view all the answers

What is one of the major unmet needs affecting disabled children?

<p>Comprehensive healthcare services (A)</p> Signup and view all the answers

What consequence is associated with poverty in the context of children's healthcare and technology access?

<p>Increased physical health issues (C)</p> Signup and view all the answers

What is a key feature of 'An Act respecting end-of-life care' in Quebec for minors?

<p>It permits palliative sedation for minors. (A)</p> Signup and view all the answers

Which aspect of child rights is emphasized in nursing regarding children's voices?

<p>Children are acknowledged as moral agents with their own views and concerns. (C)</p> Signup and view all the answers

In the context of pediatric palliative care, what role does the Hermeneutical Rapprochement Framework play?

<p>It offers a method for reconciling differing ethical views. (C)</p> Signup and view all the answers

What is NOT a feature of the legal framework surrounding Medical Assistance in Dying for minors?

<p>It permits children under 18 to choose euthanasia. (A)</p> Signup and view all the answers

What is a common misconception regarding pediatric palliative care?

<p>Palliative sedation is intended to hasten death. (B)</p> Signup and view all the answers

Which strategy emphasizes the importance of children's involvement in policy-making?

<p>Participatory models advocate with children, respecting their agency. (C)</p> Signup and view all the answers

Which of the following best describes the legal status of advance medical directives for minors in Quebec?

<p>Advance medical directives are legalized but only applicable to adults. (D)</p> Signup and view all the answers

What ethical issue arises when discussing the role of nursing in children's healthcare?

<p>Nurses must evaluate and participate in ethical discussions actively. (B)</p> Signup and view all the answers

What is a primary consideration regarding children's rights in healthcare decisions?

<p>Children's concerns and interpretations must be included in decisions. (D)</p> Signup and view all the answers

How should nurses approach ethical dilemmas in pediatric palliative care?

<p>Actively identify and address key ethical concerns in collaboration with the team. (A)</p> Signup and view all the answers

Flashcards

Resuscitative therapies for a 7-year-old with cancer

Ethical considerations arise when parents insist on life-sustaining treatments for a child with end-stage cancer, despite the possibility of limitations to the quality of life. Such treatments may include mechanical ventilation, high-dose medication, and intense interventions.

Religious beliefs and medical treatment (Jehovah's Witness)

Religious beliefs can create conflicts between the patient's medical needs and the patient's/family's wishes, as exemplified with a Jehovah's Witness who refuses necessary blood transfusions, despite the risk to their life.

Honesty in telling a diagnosis

The ethical dilemma of whether to disclose a severe prognosis to a 12-year-old with cancer when the child's father prefers not to.

Obligation to provide food and water

Ethical question of whether there is a fundamental obligation to provide necessities like food and water to patients in critical conditions.

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Ethical considerations in pediatric intensive care

Ethical questions related to life-sustaining measures, religious beliefs, truth-telling, and the basic right to food/water arise from situations in pediatric intensive care.

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Vulnerable Children

Children at risk of harm or disadvantage due to various factors such as disabilities, mental health concerns, poverty, or immigration status.

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Pediatric Ethical Norms (Canada)

Guidelines for making healthcare decisions about infants, children and adolescents in Canada (e.g., balancing the child's best interests with parental involvement).

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Child's Best Interest

The fundamental principle in making decisions about a child's healthcare; considering what's most beneficial for the child.

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Surrogate Decision Makers

Adults who make healthcare decisions on behalf of children, often parents.

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Cardiopulmonary Arrest

A complete cessation of the heart and lung functions.

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Severe Neurological Injury

Significant damage to the brain or nervous system, often causing lasting disability.

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Treatment Decisions (Children)

Determining appropriate therapies and care for infants, children, and adolescents.

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Confidentiality Issues (Children)

Concerns about protecting a child's privacy and respecting their wishes about sharing information.

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Mature Minor

A person under the age of majority who has the capacity to make informed healthcare decisions and the independence to make voluntary decisions.

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Healthcare Decision-Making Capacity

The ability to understand information relevant to a healthcare decision, appreciate the implications of that decision, and communicate a choice.

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Child's Assent

Voluntary agreement to proposed medical care, even if they haven't reached legal decision-making age.

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Child's Voice

Children's perspectives and needs, important to understand, even if not in legal terms.

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Confidentiality in Pediatric Care

Maintaining private information about a child's health and care.

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Interpreting Child's Assent

Understanding and respecting a child's agreement, even if they haven't reached legal decision age.

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Treatment Decisions (Infants, Children, Adolescents)

Decisions regarding medical care for individuals under the age of majority.

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Evolving Maturity

A child's capacity to make decisions can change as they grow and learn, regardless of their age.

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Palliative Care for Children

A specialized type of care that focuses on improving the quality of life for children with serious illnesses. It aims to relieve symptoms, provide emotional support, and help families cope.

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Ethical Challenges in Pediatric Palliative Care

Difficult moral questions that arise when caring for children with life-limiting illnesses. Examples include decisions about life-sustaining treatments, end-of-life care, and disclosing diagnoses to children.

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Double Effect Principle

The principle that it's okay to perform an action with a good intention, even if it has a foreseeable bad consequence, as long as the bad consequence is not directly intended.

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Palliative Sedation

Using medication to relieve pain and distress in a child with a serious illness, even if it may shorten their life.

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Life-Sustaining Treatment

Medical interventions aimed at keeping a child alive, such as mechanical ventilation, feeding tubes, or medications.

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When Can Life-Sustaining Treatment be Limited?

Ethical considerations allow limiting life-sustaining treatments when the child is in irreversible imminent death, the treatment is ineffective or harmful, or it allows for greater palliative care.

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Inequitable Childhoods

Children experiencing significant disparities in access to healthcare, education, and other essential resources due to factors like poverty, disability, or migration status.

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Amplified Inequity During COVID-19

The COVID-19 pandemic has exacerbated existing inequities for children. Factors include disrupted education, increased family stress, and limited access to technology for remote learning.

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High-Dose Sedation in Palliative Care

Using high-dose sedatives to manage pain and suffering in terminally ill patients when other methods are ineffective, even if it carries the risk of death. This is ethically acceptable when certain conditions are met.

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Four Conditions for Ethical High-Dose Sedation

The ethical use of high-dose sedation requires these conditions: 1) The act itself is good or neutral, 2) The intention is for the good effect (pain relief), not the bad (death), 3) The good outweighs the bad, and 4) Death is not used as a means to achieve the good effect.

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Withdrawing Artificial Nutrition & Hydration (ANH)

Stopping the use of artificial methods of feeding and hydrating a patient, usually in end-of-life situations. This is legally and ethically permissible when it's deemed to be in the best interest of the child.

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Best Interest of the Child

This principle guides medical decisions for children in palliative care. It means choosing what is best for the child's well-being, considering their quality of life, physical and emotional comfort, and overall needs.

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Ethical Considerations in Pediatric Palliative Care

This branch of medicine focuses on managing pain, suffering, and overall well-being of children with life-limiting illnesses. It involves ethical considerations related to treatment decisions, respecting family wishes, and ensuring the highest quality of life for the child.

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Medical Assistance in Dying (MAID)

A legal process in Canada allowing individuals to request and receive medical help to end their life. This is a right for adults but not for children.

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Advance Medical Directives (AMD)

A legal document used by adults to express their wishes for end-of-life care if they become unable to make decisions for themselves.

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Moral Agents

Individuals recognized as having the capacity to make ethical judgments and understand the consequences of their actions.

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Participatory Models

Strategies that involve young people directly in decision-making processes that affect them.

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Hermeneutical Rapprochement

A framework for ethical analysis that involves understanding the historical, political, and cultural context of a situation, and seeking consensus between different perspectives.

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Ethical Discussions in Nursing

Important conversations among nurses and other healthcare professionals to identify and address ethical dilemmas in patient care.

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Reconciliation in Healthcare

The process of understanding and addressing conflicts between ethical principles and patient needs, striving for a balanced approach.

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Multiply Vulnerable Children

Children experiencing multiple vulnerabilities, such as poverty and disability, increasing their risk of harm.

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Best Interest Standard

The principle that healthcare decisions for children should prioritize their well-being and what is best for them.

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Parental Decisional Autonomy

The legal right of parents to make healthcare decisions for their children, unless the child is deemed capable of making their own decisions.

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Assent

A child's voluntary agreement to medical treatment, even if they cannot legally consent.

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Capacity

A person's ability to understand healthcare information, appreciate the consequences of decisions, and communicate their choices.

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Confidentiality

Keeping a child's medical information private and secure, respecting their privacy and wishes about sharing information.

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Ethical Challenges

Difficult moral questions and dilemmas that arise in healthcare decision-making for children, such as balancing parental rights with a child's best interest.

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Value of Life for Disabled Children

Adults often undervalue and misunderstand the quality of life experienced by disabled children, overlooking their capacity to live fulfilling lives.

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Inescapable Tragedy in Critical Care

Pediatric critical care often involves making difficult choices between bad options, leading to moral distress for healthcare professionals.

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Ethical Dilemmas in Nursing Children

Nursing children and families presents ethical challenges related to critical illness, inequities, and respecting the child's voice.

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Children's Voice in Healthcare

Recognizing and valuing a child's own perspective and needs, even when they may not have legal decision-making capacity.

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Inequity in Childhood

Children face significant disparities in access to healthcare, education, and other essential resources due to factors like poverty, disability, or migration status.

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Confidentiality in Healthcare

Keeping private information about a patient's health and care, including conversations and medical records.

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Exceptions to Confidentiality

Circumstances where healthcare providers are allowed to disclose a patient's private information, such as when there's a risk of harm to the patient or others.

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Conditions for Disclosure

Specific criteria that must be met before confidential information can be shared, including a clear risk to identifiable people and imminent danger.

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Limited Disclosure

Sharing only the necessary information to address the immediate risk, while protecting as much of the patient's privacy as possible.

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Ethical Challenges in Nursing Children

Difficult moral questions that arise when caring for children, such as deciding on appropriate treatment for newborns or managing long-term disabilities.

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Newborns as Full Persons

Recognizing newborns as deserving equal moral consideration and care as older children, despite their age and vulnerability.

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Excessive Resuscitative Therapies

Aggressive medical interventions that may be overly burdensome for newborns, especially those with significant health problems.

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Developing Standards for Limiting Treatment

Creating guidelines for healthcare professionals to make ethical decisions about limiting treatment in difficult cases like newborns with severe conditions.

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Pediatric Palliative Care: Ethical Dilemma

When is it ethically acceptable to administer medications that might shorten a child's life, as in palliative sedation, aiming to relieve suffering?

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Life-Sustaining Treatment Limits

When can life-sustaining treatment be limited for a child? It's acceptable when the child is facing imminent death, treatment is ineffective or harmful, or limiting treatment allows for better palliative care.

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End-of-Life Care

Care provided when a person is nearing the end of life, focusing on comfort and support.

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Study Notes

Childhood Ethics

  • Franco A. Carnevale is a nurse, psychologist, clinical ethicist, full professor, and principal investigator at McGill University.
  • He has expertise in children and youth.
  • He's involved in interdisciplinary childhood ethics research and has a website and Twitter account (@childethics).
  • He researches at Douglas Mental Health University Institute, Le Phare, Shriner's Hospitals for Children (Canada), Montreal Children's Hospital - MUHC.

Resuscitative Therapies

  • A 7-year-old girl with end-stage cancer was admitted to the PICU.
  • Her parents insisted on life-sustaining treatment including mechanical ventilation and high-dose inotropic support.
  • Skin breakdown and hemodynamic instability occurred.
  • Parents objected to limiting chest compressions.

Religious Beliefs & Clinical Practices

  • A 15-year-old with multiple trauma was a Jehovah's Witness, refusing blood products along with her mother.
  • Hemodynamic instability was present.
  • Hemoglobin (Hgb) levels were 85…35.

Should the Truth Be Told?

  • A 12-year-old boy with metastasized cancer required surgery, radiotherapy, and chemotherapy.
  • His prognosis was severely guarded.
  • The father was against disclosing the diagnosis/prognosis to the boy.
  • His family's cultural norms indicated this was a burden for the parents.

Basic Obligation to Provide Food & Water

  • A 3-year-old girl underwent a tonsillectomy and adenoidectomy (T&A).
  • She suffered severe hemorrhage overnight, cardiopulmonary arrest, and severe brain injury.
  • Two weeks later, she was breathing spontaneously, had severe neurological injury, and a severe disability was projected, requiring at least one month to confirm.
  • Parents insisted on discontinuing nutrition/hydration.

Children's Vulnerability

  • Children are disadvantaged physically, psychologically, socially, and legally.
  • Socially, they have difficulty discerning who to trust.
  • Legally, they cannot independently pursue their rights.

Multiply Vulnerable Children

  • Examples of particularly vulnerable children include disabled children, those with mental health concerns, LGBTQ2A youth, newborns, Indigenous children, migrant newcomers, those experiencing low income/poverty, cultural/religious/racial diversity, child welfare (youth protection) issues, pediatric palliative care, and global child health concerns.

Nursing Children & Families: Ethical Challenges

  • The criteria for providing therapies need to be established.
  • Decision-making roles need to be identified.
  • Children's perspectives need to be incorporated.
  • Confidentiality considerations, particularly between children and parents and among team members, and within pediatric palliative care need to be addressed.
  • Additional challenges within pediatric palliative care need more discussion.

Pediatric Ethical Norms (Canada)

  • All infants, children, and adolescents have dignity, intrinsic value, and a claim to respect, protection, and appropriate medical treatment.
  • Parents are often appropriate surrogate decision makers for children.
  • Children and adolescents should be involved in decisions affecting them and once they develop sufficient decision-making capacity, they should be the principal decision-makers for themselves.

Medical Decision-Making in Pediatrics

  • Children and adolescents' participation in medical decisions should align with their developmental stage.
  • Healthcare professionals and surrogate decision-makers should be adequately informed by laws and regulations.
  • Patient's best interests and outcomes should guide decisions.
  • Disagreements or conflicting interests necessitate collaborative processes and identified surrogate decision-makers.
  • HCPs need to use conflict resolution processes to resolve conflicts and help patients/families access resources to resolve issues.

Criteria for Therapies

  • The 'Child's Best Interests' must be considered alongside assessing benefits and burdens.
  • The balance between prolonging life and quality of life needs careful consideration.

Who Should Decide Treatment?

  • Healthcare professionals have a duty to work toward the patient's best interest.
  • Decisions on significant care issues such as CPR or cancer treatment may be made by physicians using benevolent medical paternalism.
  • Parents generally are significant agents for children; family autonomy is important.
  • The child should be engaged based on capacity.
  • Other individuals might contribute depending on the circumstances.

What about the Child's Voice?

  • Recognizing a child's voice is crucial, even without legal decision-making capacity.
  • Child's moral agency must be respected.
  • Optimize assent by ensuring the child understands their condition, the proposed treatment, and the associated circumstances.
  • Seek the child's voluntary cooperation wherever possible.
  • Different jurisdictions have varying legal standards for minors' consent to treatment.
  • Consent/permission exceptions exist for mature minors, emancipated minors, situations requiring emergency treatment, and court-ordered interventions.

"Mature Minor" in Canada

  • "Mature Minor" isn't a universally defined term in Canadian law.
  • Decision-making capacity is rooted in the child's maturity rather than solely their age.
  • Minors' participation should align with their expressed ability and age-appropriate understanding.

Listening to Children's Voices

  • Children with communication difficulties require specialized methods.
  • Parents may help interpret their children's needs, facilitating a shared understanding within professional teams.

Confidentiality

  • Confidentiality may be breached in cases when the patient presents an imminent threat to self or others. Specific conditions exist (i.e., immediate danger, harm to self or others).
  • Disclosure should be limited to the specific risk and not go beyond what's necessary to manage the risk.

Confidentiality Conditions for Disclosure

  • Conditions requiring disclosure include a clear risk to an identifiable person or group, serious risk of bodily harm or death, and imminent danger.

Special Considerations for Newborns

  • Additional care should be implemented, understanding that newborns are children.
  • Determining if similar care practices and considerations apply need careful planning.

Excessive & Dismissive Practices

  • Recognize that newborns are children with inherent needs for protection and care..
  • Evaluate if newborns experience disparities compared to older children with similar prognoses requiring attention to disparities in care.

Long-Term Disability

  • Long-term disability requires a holistic approach, and all factors for the child's well-being need to be considered.

Daily Living With Distress

  • Families caring for ventilator-supported children face immense physical and emotional distress.
  • Support systems and services must adapt to the child's needs and the family's context.

Quality of Life

  • Evaluate the quality of life for disabled children, recognizing their unique ways of experiencing life.

Critical Illness

  • Pediatric critical care environments present unique challenges due to often uncertain diagnoses, prognoses, and tragic choices.
  • Resolution of disagreements, conflicts, and common moral distress must be addressed.

Inequities

  • Recognize existing healthcare disparities across different child populations based on various factors (disability, hunger, migrant status, Indigenous background).
  • Addressing unjust circumstances is vital for equitable healthcare systems.

Pediatric Palliative Care

  • Ethical considerations for life-sustaining treatment (e.g., nutrition, hydration), appropriateness of medications that impact life expectancy, and end-of-life care require specific attention to children's unique needs.

Medical Assistance in Dying

  • Euthanasia is not legal for children, however, societal contexts impact ethical considerations.
  • Quebec's Act respecting end-of-life care (Bill 52) may have specific considerations regarding end-of-life issues. Consideration must be given to minors. Appropriate legal frameworks should be consulted to discuss ethical issues and conflicts surrounding end-of-life, euthanasia, and palliative care.

Listening to Children's Voices

  • Child-centered considerations including children's rights, evidence, clinical evidence, research must be addressed.
  • Children's active participation is vital in governance and policy-making.

Strategies for Reconciliation

  • Proactive ethics-based discussions for nursing teams are useful.
  • Ongoing ethics education, consultations, and multidisciplinary teamwork are vital for ethical decision-making and practice.

Hermeneutical Rapprochement Framework

  • The hermeneutical framework aids in understanding situations through the lenses of societal factors, values, and needs of children.
  • It facilitates a deeper understanding of the historical and sociocultural contexts, including political implications.
  • This approach leads to a reconciliation between divergent perspectives.

Listening to Children's Voices

  • Strategies are necessary when children's voices are difficult to access. Specialized communication and interpretation methods are required.

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Childhood Ethics PDF - McGill

Description

This quiz explores the ethical considerations involved in pediatric medical decision-making, focusing on cases of critically ill children. It addresses dilemmas faced by healthcare providers and families, including issues related to resuscitative therapies, truth-telling, and the role of socio-economic factors. Test your understanding of the complex ethical landscape in pediatric care.

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