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Disclosure of Chronic Illness in School

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15 Questions

What can preparation for emergencies do in relation to chronic illnesses?

Reduce the social discomfort for the child

What is important to do when talking to children about the death of a classmate with a chronic illness?

Be honest and explain what happened using clear language

Why is it important for teachers to consider speaking to a counsellor after the death of a child?

To get support for their own grief

What can physical activity help children learn about their chronic illness?

The difference between a normal response to exercise and a response indicative of their condition

Why is it important to learn about physical responses to stress through physical activity?

So children can learn to differentiate between normal and abnormal responses

What should be considered when dealing with the death of a child with a chronic illness?

Be honest with children about what has happened

What can occur when a child with a chronic illness dies?

Classmates and staff are distressed

Why is open discussion important when dealing with chronic illnesses?

So children can feel comfortable discussing their condition and feelings

Why might parents/guardians choose not to disclose their child's chronic illness to teachers?

To avoid labelling their child

What can facilitate disclosures by parents?

Clear policy statements and information on websites

What should a teacher do if a child discloses their chronic illness in class?

Ensure the disclosure is 'safe' and ask the child to explain to the class

What is the primary goal of care coordination?

To avoid duplication of services and gaps in services

What is a potential consequence of not having care coordination?

There may be gaps in services that no professional is filling

Who is typically responsible for coordinating care?

A professional with a medical background

What should a teacher do if they discover that a child has disclosed their chronic illness to peers in the playground?

Determine if it would help to discuss with those peers to alleviate concerns

Study Notes

Disclosures by Parents and Children

  • Parents/guardians are not required to disclose their child's chronic illness to teachers, but disclosure is necessary for implementing health plans.
  • Weighing the benefits of disclosure against the disadvantages of labelling is crucial.
  • Clear policy statements and information on websites can facilitate disclosures and ensure confidentiality.

Disclosures by Children

  • Children may disclose their condition in class or to peers, even if their parents haven't disclosed to the school.
  • Teachers should ensure that disclosures are 'safe' and consider asking the child to explain their condition to classmates.
  • If a child discloses in class, teachers should discuss with the child's peers to alleviate concerns and inform the parent about the disclosure.

Care Coordination

  • Care coordination involves a professional (often with a medical background) and potentially a family member to coordinate care.
  • Care coordination prevents duplication of services and gaps in services, ensuring all needs are met.

Responses to Emergencies

  • Seizures, asthma attacks, etc. can cause distress to onlookers and embarrassment to the child.
  • Preparation for emergencies through open discussion can reduce social discomfort.

Death of a Child with a Chronic Illness

  • Death can be distressing to classmates and staff, and teachers should be honest with children about what has happened.
  • Responding to questions from children and making clear that it is very unusual for a child to die is crucial.
  • Consider speaking to a counsellor and maintaining ongoing contact with the family if appropriate.

Physical Activity and Learning about Physical Responses

  • Physical activity helps children understand how their body responds to stress and learn the differences between normal responses and those indicative of their condition.
  • It is essential to learn these differences to identify normal responses that can be controlled without assistance and those that require medication.

This quiz assesses knowledge about the need for parents to disclose their child's chronic illness to teachers, the benefits and drawbacks of disclosure, and the role of health plans.

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