Podcast
Questions and Answers
What should be considered when individuals contribute their distressing personal experiences to research?
What should be considered when individuals contribute their distressing personal experiences to research?
- Only selected experiences should be shared.
- Support and debriefing should be provided. (correct)
- Their experiences should be kept confidential.
- They should not discuss their experiences.
Which of the following represents a potential pitfall in involving individuals with lived experience in research?
Which of the following represents a potential pitfall in involving individuals with lived experience in research?
- Lack of appropriate reimbursement for their contributions. (correct)
- Genuine collaboration with researchers.
- Collective decision-making in research design.
- Authentic engagement rather than tokenism.
What is one key message regarding the involvement of people with lived experience in research?
What is one key message regarding the involvement of people with lived experience in research?
- Their input should be considered essential throughout the research process. (correct)
- Their involvement should only happen in the dissemination phase.
- Only researchers with similar experiences should devise the research questions.
- They should only provide input on their personal stories.
What outcome should researchers expect from involving people with lived experience in their research?
What outcome should researchers expect from involving people with lived experience in their research?
What is a key advantage of involving people with relevant lived experience in research?
What is a key advantage of involving people with relevant lived experience in research?
Which term describes researchers who have relevant personal experience and are involved in conducting research?
Which term describes researchers who have relevant personal experience and are involved in conducting research?
In the context of public patient involvement, who is usually sought as participants?
In the context of public patient involvement, who is usually sought as participants?
What is the primary purpose of co-production in research?
What is the primary purpose of co-production in research?
What challenges does co-production face in university-based research?
What challenges does co-production face in university-based research?
What characterizes service user and survivor-led research?
What characterizes service user and survivor-led research?
In participatory research, what happens to the power dynamics between researchers and participants?
In participatory research, what happens to the power dynamics between researchers and participants?
What is a primary focus of co-design within research?
What is a primary focus of co-design within research?
Flashcards
Public Patient Involvement (PPI)
Public Patient Involvement (PPI)
A broad term encompassing various levels of involvement of people with lived experience in research, crucial for research funding applications. It often means consultation with stakeholders about research questions and design.
Service User Researchers
Service User Researchers
Individuals with lived experience recruited for their unique expertise and personal experience in research, often involved in data collection, analysis, and reporting, like designing instruments or interviews.
Co-Production
Co-Production
A collaborative research model where researchers, clinicians, and service users work together throughout the entire research process, sharing power and responsibilities equally.
Service User/Survivor-Led Research
Service User/Survivor-Led Research
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Participatory Research
Participatory Research
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Co-design
Co-design
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Research Ethics & Social Justice
Research Ethics & Social Justice
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Relevance of Research
Relevance of Research
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Public Involvement in Research
Public Involvement in Research
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Lived Experience Researchers
Lived Experience Researchers
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Research Impact Beyond Academia
Research Impact Beyond Academia
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Appropriateness of Reimbursement
Appropriateness of Reimbursement
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Support for Participants
Support for Participants
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Study Notes
Core Principles of Mental Health Research: Public Patient Involvement (PPI)
- PPI is the involvement of people with lived experience in research
- Ethical and social justice are key reasons for PPI
- It promotes more successful research
- It leads to greater impact and more effective dissemination of research findings
- PPI helps build research capacity
- PPI can be a broad umbrella term for many forms of involvement
- Essential for securing research funding
- Basic form of PPI involves consultation with stakeholders on research questions and design, rather than direct involvement in conducting research
- Participants in PPI are often service users, sought to be representative of the relevant groups, and involved in conducting and reporting research
- This increasing involvement includes design of instruments, conducting interviews, data analysis, reporting, etc.
- Researchers often recruited due to relevant skills and personal experiences, not just experience
- Often those recruited have experience in areas that the research relates to.
- Training and support of service users in research is essential
- Collaboration is essential, researchers, clinicians and service users work together
- Key concept within PPI is co-production which means collaboration between stakeholders throughout the research process
- Research projects should be accountable and share power equally
- PPI is often susceptible to becoming watered down in current research environments
- Service user and survivor-led research needs to empower research participants
Important Messages and Pitfalls in PPI
- Involvement of people with lived experience should be essential throughout the research process, from question formulation to dissemination
- The boundaries between researchers are often blurred, with multiple roles expected, and power dynamics may be complex; support, debriefing and reflective spaces are key
- Research experiences can be distressing for participants
- The people involved in research should have impact across various groups
- Research participants should include those who have had and marginalized experiences
- A wide range of people should be involved in research
- Engagement should be genuine, rather than symbolic (tokenism)
- Adequate support and training are important
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Description
This quiz explores the core principles of Public Patient Involvement (PPI) in mental health research. It highlights the importance of ethical considerations, capacity building, and the ways in which lived experiences enhance research efficacy and impact. Understand how PPI contributes to more effective research outcomes and funding opportunities.
