Clinical Data Repository Lecture
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Questions and Answers

What does Cdr stand for?

Clinical Data Repository

What is the difference between electronic and written CDRs?

  • Written CDRs are more detailed than electronic CDRs.
  • There is no difference, they achieve the same purpose.
  • Electronic CDRs are more secure than written CDRs
  • Electronic CDRs are digital while written CDRs are physical (correct)

    • What are some of the common types of clinical documentation found in CDRs?

  • Laboratory results
  • Diagnostic Reports
  • Nursing notes
  • All of the above (correct)

    • What is the main purpose of the data assimilated in a CDR?

    <p>To provide a comprehensive and longitudinal view of a patient's medical history</p> Signup and view all the answers

    CDRs are only used by hospitals.

    <p>False</p> Signup and view all the answers

    What is the first bit of data gathered in a clinical data repository?

    <p>Demographics</p> Signup and view all the answers

    What are a few examples of information included in a patient's demographics?

    <p>Age, gender, color, ethnicity, income, name, allergies, occupation, residence, contact information, insurance information, and medical history are just a few examples of details included in a patient's demographics.</p> Signup and view all the answers

    What are some examples of primary care providers included in a CDR?

    <p>All of the Above</p> Signup and view all the answers

    A medication list is important for understanding a patient's past treatments and potential allergies.

    <p>True</p> Signup and view all the answers

    An allergen is a substance that is always dangerous to an individual.

    <p>False</p> Signup and view all the answers

    What information is included in a hospital inpatient visit record?

    <p>Date, time, name, and relation to the patient</p> Signup and view all the answers

    Emergency department encounters are the same as outpatient practice visits.

    <p>False</p> Signup and view all the answers

    What is the purpose of immunizations in patient records?

    <p>To document the patient's vaccination history</p> Signup and view all the answers

    What kind of information is contained in a patient's social history?

    <p>Patient's distinct health-related habits and socioeconomic determinants of health</p> Signup and view all the answers

    Social history can be more sensitive to disclose than other types of medical information.

    <p>True</p> Signup and view all the answers

    What are a few examples of information that might be included in a patient's social history?

    <p>Smoking, alcohol and recreational drug interests, occupation, and places they have visited</p> Signup and view all the answers

    What are vitals?

    <p>Measurements of the body's most basic function</p> Signup and view all the answers

    Which of the following is NOT considered a vital sign?

    <p>Blood pressure</p> Signup and view all the answers

    The information in a CDR is used to make more informed patient care decisions?

    <p>True</p> Signup and view all the answers

    What is one of the main disadvantages of using CDRs?

    <p>They are often only integrated with clinical data, excluding other patient-related information.</p> Signup and view all the answers

    What are the three main advantages of using CDRs?

    <p>They help make more informed patient care decisions, provide a longitudinal view of a patient's medical record, and help avoid redundant treatments</p> Signup and view all the answers

    What are four other examples of data repositories?

    <p>Data warehouses, data lakes, data marts, and data cubes</p> Signup and view all the answers

    What is the main characteristic of data warehouses?

    <p>They aggregate data from different sources or segments of an organization</p> Signup and view all the answers

    What is the main characteristic of data lakes?

    <p>They store and structure large amounts of data that is classified and tagged with metadata</p> Signup and view all the answers

    How do clinical data repositories work?

    <p>They aggregate clinical data from various healthcare organizations to create a longitudinal patient record</p> Signup and view all the answers

    What is the purpose of a web portal in the context of CDRs?

    <p>It allows information to be sent from different certified EHRs and sometimes web portals to the CDR</p> Signup and view all the answers

    What is the role of an EHR (Electronic Health Record) platform?

    <p>It authenticates trading partners and facilitates standardized transaction exchange between different EHR platforms</p> Signup and view all the answers

    What is the purpose of the data storage function of the CDR?

    <p>It acts as a repository for information needed by the hospital information systems or for specific inquiries</p> Signup and view all the answers

    Why do we need clinical data repositories?

    <p>They provide access to information where it is needed, creating a one-stop shopping environment</p> Signup and view all the answers

    How can GUI be deployed in healthcare settings?

    <p>It can be deployed through handheld devices, bedside computing devices, and computers in physician offices</p> Signup and view all the answers

    What is the main purpose of XML?

    <p>It is used for storing and transferring data on the web and in many other applications</p> Signup and view all the answers

    What are the six things that the level of integration of a CDR depends on?

    <p>One locations, 2 indices, 3 catalogues, 4 semantic translations or equivalents, 5 syntactic structures, and 6 links to external information</p> Signup and view all the answers

    What are the three types of clinical data repositories?

    <p>Study, Electronic Health Record, and Registry</p> Signup and view all the answers

    What is the purpose of a study repository?

    <p>It collects observations of a specific clinical research study</p> Signup and view all the answers

    What is the purpose of an electronic health record (EHR)?

    <p>It contains observations made as a result of direct healthcare</p> Signup and view all the answers

    What is the purpose of registries?

    <p>They collect and organize observations for the purpose of studying or guiding particular outcomes</p> Signup and view all the answers

    What is the purpose of data warehouses?

    <p>They add levels of integration and quality to the primary data of a single institution</p> Signup and view all the answers

    What is the purpose of data collections?

    <p>They provide a library of heterogeneous data sets from more organizations</p> Signup and view all the answers

    What is the purpose of federated data repositories?

    <p>They are distributed across multiple locations, where each location retains control over access to its own data</p> Signup and view all the answers

    Why are multiple views of patient medical records important?

    <p>They allow for the assessment of the occurrence or prevalence of certain diagnoses, lab results, or prescriptions within a set period of time</p> Signup and view all the answers

    What is the purpose of data visualization?

    <p>To represent data in the form of pictorial or graphical formats for analysis</p> Signup and view all the answers

    What is the purpose of the Universal Health Care Act (Republic Act 11223)?

    <p>It provides the legal basis for health reforms in the Philippines</p> Signup and view all the answers

    What are the mandated health-related data submissions under the Universal Health Care Act?

    <p>All public and private national and local health-related entities are mandated to submit health and health-related data</p> Signup and view all the answers

    What is meant by the term data curation?

    <p>It involves data aggregation, disambiguation, and ensuring data quality and integrity</p> Signup and view all the answers

    What is the purpose of the National Health Data Repository (NDHR)?

    <p>It is used to collect, integrate, and harmonize existing health information systems and sources of data</p> Signup and view all the answers

    Why is the submission and processing of health data considered an integral part of the health care system?

    <p>It helps promote better performance in the health system while ensuring data integrity and data protection</p> Signup and view all the answers

    What is the purpose of the Philippines COVID-19 registry?

    <p>It collects and organizes COVID-19 related observations for the purpose of studying or guiding particular outcomes</p> Signup and view all the answers

    What is meant by the term data dashboard?

    <p>It is a data visualization tool that presents key performance indicators and metrics related to a specific topic</p> Signup and view all the answers

    The lecture discussed that a critical data repository is easy to understand, and it should be simple to learn.

    <p>True</p> Signup and view all the answers

    Study Notes

    Clinical Data Repository Lecture

    • Course: First Year
    • Date: End of first semester
    • Lecturer: Matthew Switji Tobuhara
    • Topic: Clinical data repositories

    Objectives

    • Discuss clinical data repositories (CDRs)
    • Explain different types of CDRs
    • Describe advantages/disadvantages of multiple views
    • Discuss CDRs in the Philippines

    Content Outline (5 Parts)

    • Clinical Data Repositories
    • Standalone XML Based Interface
    • Multiple Views for Patient Medical Records
    • CDR in the Philippines

    Part 1: Clinical Data Repositories

    • Definition: Clinical Data Repository (CDR) is also known as a clinical data library or data archive.
    • Structure: A large database infrastructure containing several databases that collect, manage, and store data sets for analysis, sharing, and reporting.
    • Characteristics: Searchable and exportable due to standardization.
    • Format: Can be electronic or written.
    • Components: Laboratory results, diagnostic reports, and clinical documentation.
    • Integration: Integrates data from various information systems (laboratory, radiology, etc.).
    • Data Types: Combines clinical data and external data.

    Part 2: Patient Demographics

    • Definition: The basic information about a patient.
    • Information: Age, gender, ethnicity, income, name, allergies, occupation, residence, contact information, insurance details, medical history, primary care providers.
    • Medication List: Patient's current medications.
    • Allergies: Details of patient allergies for avoidance
    • Hospital Visits: Inpatient and Outpatient details

    Part 3: Additional Patient Information

    • Emergency Department Encounters
    • Outpatient Visits
    • Immunizations
    • Diagnosis
    • Procedures
    • Laboratory Results
    • Social History
    • Vital Signs (Vitals): Body temperature, pulse rate, respiration rate, blood pressure

    Part 4: Multiple Views of Patient Medical Records

    • Data Use: Assist with diagnoses, lab results, prescriptions for analysis and prevalence assessment
    • Longitudinal View: Provide a comprehensive record of a patient's health over time.
    • Reduced Redundancy: Avoids redundant or repeated information
    • Improved Experience: Improved patient experience
    • Data Quality: Includes the data collection and data validation
    • Republic Act 11223: Universal Health Care Act
    • Data Submission: Mandates data submission to health authorities by public and private institutions.
    • Compliance: Requirement to maintain health systems consistent with Department of Health (DOH) standards.
    • Data Integrity: Data collection, data storage, and data validation processes need to adhere to regulatory standards.
    • COVID-19 Registry: Creation of a registry for the purpose of study and guidance specific to the Philippines
    • Data Presentation Format: Data can be presented in various pictorial or graphical formats
    • Data Relevance: Emphasizes the relevance of clinical data to healthcare practices (including locations and types of information)

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    Clinical Data Repository Lecture PDF

    Description

    This quiz covers essential concepts of Clinical Data Repositories (CDRs) including their definition, structure, and types. Explore the advantages and disadvantages of multiple views in patient medical records, with a focus on CDRs specific to the Philippines. Prepare to assess your understanding of these critical data management systems.

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